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Old 01-09-2007, 11:02 AM   #1
rinaina
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Question Could it be the Herceptin?
I have been experiencing some pain in the tips and nails of my toes lately, probably for a few weeks or more and I am wondering what this could be. Anyone who is on Herceptin or has been on Herceptin ever experience anything like this? I have no discomfort anywhere else..just my toes. Stranger things have happened!
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 01-09-2007, 01:51 PM   #2
juanita
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could be leftover neuropathy from your chemo. I still have it over two years later, just in my big toes.
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Old 01-09-2007, 04:20 PM   #3
rinaina
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Juanita, I thought neuropathy just causes numbness or tingling? I have discomfort.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 01-09-2007, 04:22 PM   #4
tousled1
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I've experienced severe bone/joint pain while on Herceptin including my feet and toes. I now have my herceptin reconstituted with saline water and no more bone/joint pain.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-09-2007, 09:03 PM   #5
julierene
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I get numbness on my fingers on occassion. I don't ever have rhyme or reason for it, so I blame it on less lymph nodes and surgery under my arms. Guess that wouldn't explain the toes... I have had so many chemo drugs and drugs, I don't know anything anymore!

Are you taking any pain meds? Those really aggrevate the numbness.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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