Re: Second Reoccurance
Tamera,
Are you only weakly ER+? I was only 5% in my initial diagnosis in 2003 and had received very conflicted opinions from my doctors. Initially my oncologist told me I was ER - and couldn't use Tamoxifen. But after completing chemo sessions, two different doctors mentioned about my starting Tamoxifen. I thought they were crazy. After the second one, I called my oncologist's office, then he gave me a prescription.
After the recurrence and mastectomy, we played the same game again and I got the prescritption. Finally it was revealed that I was only 5% ER+. But another doctor (my sister-in-law's doctor overseas) told me that even at 5% ER+, it's still beneficial to get Tamoxifen or AI.
I thought I was going to continue with an AI after oophorectomy mid January, but my oncologist did not want me to. Suddently I received a note from him several days after my last office visit (end of August) stating "just wanted to make sure you are taking your Tamoxifen".
Then I found a new article talking about the benefit of Tamoxifen to the bones for post-menopausal women. That's the only possible reason I could find.
One possible reason why your surgeon recommend stronger chemo might be to cover his/her embarrassment having had to operate on you again. My surgeon was quite upset when the recurrence was confirmed. "I had a clear margin!" she repeated the sentence several times to me.
Let us know what you find out from the 2nd opinion doctor.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
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