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Old 10-26-2009, 09:41 AM   #1
margiermc
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Join Date: Aug 2009
Posts: 94
VACCINE in Washington, I travel from Tampa, Florida

I was originally given this website by Doreen in WA - I wanted to meet other women who are on the vaccine in Seattle Washington. I travel from Florida once a month for this and next November will be my last vaccine. Any reactions? I'm ok., but interested in anyone who is on
the vaccine. thanks - I welcome private messages, emails, margie
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Old 10-26-2009, 11:55 AM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Wink Re: VACCINE in Washington, I travel from Tampa, Florida

Hello traveler!

I happen to live about 20 minutes from the U of W Medical Center. Over the years I have met around 9 or 10 gals from this site who came for the vaccines. Have never been able to qualify for any of them myself for various reasons.

If you don't get a direct answer from anyone currently on the vaccine trials, maybe phrase the post differently and use the Search bar which will give you lots of hits on vaccines.

When is your next date in Nov? Maybe we can meet if schedules permit?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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