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Old 05-30-2008, 08:21 AM   #1
RhondaH
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Exclamation 6/4/08...HAPPY 25th WEDDING ANNIVERSARY JOE AND CHRISTINE!!!!

I was just sitting here thinking about ASCO and it just dawned on me that you weren't going due to this "special event". Next up the GOLDEN one Have a wonderful anniversary and many more wonderful years.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 05-30-2008, 08:22 AM   #2
Mary Jo
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Sending my congratulations also. Oh happy day!!!!!!!!!

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 05-30-2008, 08:43 AM   #3
Vi Schorpp
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Congratulations

on your anniversary! Much love to both of you and thanks for everything you do.
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Old 05-30-2008, 09:17 AM   #4
lizm100
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Happy Anniversary to You!!!

Congratulations on your anniversary!!!!!
Na zdrowie i sto lat!!! Which means "cheers" & wishing you "100 years" in Polish.

Liz
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Old 05-30-2008, 09:51 AM   #5
Patb
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Happy, happy, happy and many more.
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 05-30-2008, 10:18 AM   #6
caya
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Happy Anniversary Joe and Christine - silver, then gold!!

all the best
caya

(My DH and I celebrated our 25th in Oct. 2007)
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 05-31-2008, 05:15 AM   #7
Mary Anne in TX
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Hope you do something really wonderful to celebrate the day!!!
ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 05-31-2008, 06:56 AM   #8
sarah
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Dear Joe and Christine,
A very Happy anniversary!!! Congratulations!
We love you, you are very special people
hugs and love sarah
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Old 05-31-2008, 07:20 AM   #9
Joan M
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Joe and Christine,

Happy Anniversary!

Best wishes,

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 05-31-2008, 08:05 AM   #10
Joe
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Rhonda was a bit premature. Our wedding date is actually June 4th and we are planning a large celebration in Wayne, NJ on June 14th.

This anniversary is quite special to us as when Christine was diagnosed as stage IV in 1999, we both thought that we wouldn't be celebrating our next anniversary.

The best present that we received was the announcement yesterday at ASCO by MD Anderson that HER2+ breast cancer patients are surviving longer that others.

In 2001, when this website was launched all we were told was taht "HER2 cancer is very agressive with a poor prognosis".

Dr. Eric Winer of Dana Farber and others have told us that within 5 years HER2 breast cancer will be a treatable disease. Hopefully by our 30th anniversary we will all be able to get on with our lives.

Regards
Joe
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Illegitimi non carborundum


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Old 05-31-2008, 03:29 PM   #11
Paty
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Joe and Christine,

Happy upcomming wedding anniversary and many more to come. Thanks so much for being there!!!

With love,

Paty
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 05-31-2008, 03:57 PM   #12
Bill
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Happy Anniversary Joe and Christine!
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Old 05-31-2008, 04:29 PM   #13
ElaineM
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Anniversary

Hi,
Congratulations !! It seems like we are having a virtual celebration for your anniversary. Does anyone know how to provide virtual food and beverages? Smile.
Be sure to have your own celebration Joe and Christine.
25 years together is special.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 05-31-2008, 04:38 PM   #14
Faith in Him
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Congrats on your anniversary.
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 05-31-2008, 05:43 PM   #15
Chelee
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Christine & Joe, Actually Rhonda was right on target. I just noticed she put your anniversary date in the title of her post. Rhonda is quick...she's always one step ahead of the game.

I'd like to wish you both a wonderful 25th wedding Anniversary! Its so nice to hear Christine & you have a large celebration planned in NJ. Congratulations and much happiness to both of you.

(Thanks so much for sharing the news from the ASCO & Dr. Winer. That made my day.)

HAPPY ANNIVERSARY!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 06-02-2008, 07:59 PM   #16
Vanessa
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Happy 25th anniversary to a very special couple!!!!!!!!!!!!
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Old 06-01-2008, 03:29 AM   #17
madubois63
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Christine & Joe - I can not say how happy I am to be here wishing you both such a special anniversary. The two of you are beautiful together and you compliment each other so well. It's special for any marriage to make it this far, but to have gone through everything and made so much out of it all is simply remarkable.

Happy, Happy Anniversary!!!!

With all my love - Maryann (Madame DuBois)
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Old 06-01-2008, 09:08 AM   #18
Kim in CA
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Smile

Dear Christine and Joe,

Happy 25th anniversary. Carroll and I will drink a toast to you on your special day. You have meant so much to us and our family. What do you have planned for your 50th?!

Love Kim
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Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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Old 06-01-2008, 09:13 AM   #19
Joy
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what a beautiful thing

for a beautiful couple. Wishing you many more happy years together and please know how inspiring you two are with your hard work, passion for the cause and your marriage. Thank you so much Joe and Christine!
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 06-03-2008, 09:28 AM   #20
schoolteacher
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Congratulations Joe and Christine. Thanks also for the good news from Dana Faber about HER2 BC.

Amelia
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