HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 02-09-2008, 01:11 AM   #1
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Unhappy Pain after chemo an rads

Hi my Friends! I need you.
I did not post much lately because I am discouraged. And I was ashamed to post pain problems when others were fighting a stage IV.
I have severe neuropathy in my arm since the mastectomy for which I take Neurontin. One year after surgery now and no improvement. I am surprised why nobody ever mentions this terrible "side effect" as a risk and there are no Doctors working to prevent it.
But on top of that I have horrible pain in the upper part of my back since the end of the chemo+surgery+radiation. That was last April. I take Morphine to be able to stand it.
The Doctors made me stop Aromasine and Tykerb for a month to see what is coming from the treatment and what may be damage from the initial treatment. Of course I had an MRI of my spine and it is fine.
It has been 2 weeks now and the only improvements are the joint pains and more energy.
I am very very worried. I was hoping the pain was coming from my treatment.
Did you ever hear about nerve or muscle damage after Chemo/ Radiation that could cause such damage as the doctors seem to think?
Any articles on that?
Thank you for your help. I am very down.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote
Old 02-09-2008, 02:05 AM   #2
DonnaD
Senior Member
 
DonnaD's Avatar
 
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
Michka,
I have no words of wisdom. Just wanted to post and let you know I am sorry you are going through this. I hope someone on the site will be able to give you some much needed information.

You are in my thoughts and prayers.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
DonnaD is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:53 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter