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07-20-2007, 05:07 AM
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#1
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Me & My Shadow......
OK, maybe its just me but I think I can see a faint shadow of hair...just had Taxol #5 yesterday...maybe its because my hair was dark? Getting tired of not sleeping well, bought some Advil PM that has benedryl in it, so I will try that....it works great on me when I get it IV.
On the lighter side, my husband says I am like a CHIA PET....just sitting here waiting to see what grows on this head.....could be a new thing....the chemo chia pets....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-20-2007, 05:32 AM
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#2
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Sheila,
I hope that you can find a way to get some sleep soon. It really shades everything when you can't sleep on top of everything else. It appears as though it hasn't dampened your sense of humor though.
Love, Hope, Peace,
Carolyn
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07-20-2007, 06:37 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Sheila!
My hair began to grow back while I was on Taxol also. But my eyebrows and eyelashes did an incredible vanishing act!!! Seemed crazy to me, but that's what happened. It did look a look like a chia pet to me too! But it felt so good to feel something on top of my head when I "washed my hair" each day!
You're terrific, Sheila! You'll soon go from Chia Pet to Ravishing Beauty again before you know it! World beware!!!!
Lots of love,
mary anne
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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07-20-2007, 07:10 AM
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#4
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Chia Pet!! ROFL. Wishing you a lovely night's sleep. Sweet dreams.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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07-20-2007, 07:10 AM
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#5
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Senior Member
Join Date: Aug 2006
Posts: 492
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LOL- we do become stubble obscessed on chemo! I also had growth on Taxol, but it was white and fuzzy. My husband called me Wilson- like the tennis ball.
Happy hair growth and sweet dreams!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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07-20-2007, 09:31 AM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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I looked like I had the hair of a 140 year old man when I was on Taxol! I grew back a thin base coat of white, almost transparent hair and then had hilariously sporatic white and silver 1" wires sticking out. Looked like I had stuck my finger in a light socket. LOL.
Are you adverse to a sleep aid like Lunesta? Taxol defitinitely disrupted my sleep too, and benadryl didn't work at night (only when I got infusion did it put me to sleep) - so I bit the bullet and got Lunesta. It was a god-send. I take the lowest possible dose. I never take it more than two nights in a row just to be careful of dependency... food for thought.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-20-2007, 10:21 AM
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#7
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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CH-CH-CH-Chia!!!!!!!!!!!!!!!
When is the last time I said that I admire you?? Your spirit is so full and your fight if like fire!! I hope that the laughter you get from the ones you love is greater than the laughter you provide!!
If you want to ever play pool maybe we can all get together with my hubby's scrawny legs and shoot a few games!!
Again Sheila, when I think of you so many things come to mind, of course Chia Pet is not one of them!! LOL!! LOL!! I see your rays of sunshine through the darkest of our days. You have provided us with the strength and inspiration to take another step forward.
There are so many times that I find hope in the words you say, I gather knowledge and strength and hope. If I had a magic potion you would get a sprinkle!!
Waiting For A Miracle...and ready to demand one soon!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-20-2007, 11:41 AM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Sheila,
So nice to hear from you. I always enjoying seeing that you have posted.
My onc. told me that sometimes hair can start coming back on taxol. Not mine! Boy, did I watch for growth though. My chemo ended (taxol) Nov. 30, 2005 and I don't think there was growth until like February. Honestly! Geez, I was beginning to think I'd be one of those odd balls who didn't get her hair back. But I did.
Sending hugs and a prayer for God's Peace to surround you today.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-22-2007, 09:07 PM
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#9
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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My hair started growing back towards the end of the Taxol. It too was very thin, and the colors resembled those of a skunk. Eyebrows and lashes returned quicker than the hair--although they are thinner and fewer.
I took Ambien while on chemo. Never took a sleep aid prior to chemo, but it helped me get the rest I needed which is important. When you're on chemo, the Onc seem willing to prescribe you anything you need to improve the quality of our lives.
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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07-23-2007, 05:47 AM
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#10
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Hello dear friend,
You never cease to amaze me and make me smile.
My hair began to grow again, a little fuzz, near the end of Taxol. I ever ask my onc about it. She said it can happen. Then she said and "No, it does not mean the Taxol is not working!" She knows me well.
Sleeping was and issue for me even before I was diagnosed and became even worse during treatment . I tried Tylenol PM, but it did not seem to work for me. I then tried Ambien, and Lunesta (gives a metal taste in my mouth) but both seemed to make me foggy in the morning. What works the best for me is a very low dose of Adivan (generic Lorazepam). Started out with .05 mg and now take a half of that and not every night. It is slowly getting better. I was so afraid to take anything and become dependent, but decided sleep was needed more to help me get well. Sleep is a very good thing!
Hope to see you Thursday!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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07-23-2007, 07:25 AM
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#11
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Member
Join Date: Mar 2007
Location: western NC
Posts: 17
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When I started my chemo, all of my dark hairs fell out and all the greys stayed! I honestly think it would take a nuclear blast to get rid of my grey hairs. They seem to thrive on chemo. I can't wait to see what my hair looks like when it grows back in. I would definitely take the Chia pet look over the Grandpa look.
Regarding sleep....I have been going to an accupuncturist since my chemo started, and he has helped me tremendously with not only sleep, but also nausea. One morning he put needles behind my ears and by lunchtime I was down for the count. Whatever you try, I hope it works for you!
Love and blessings,
Annie
__________________
Diagnosed 02/27/07
Right mastectomy, 7 nodes removed, all negative
tumor size 0.9 cm: ER-/PR-, Her2+++
04/25/07 start 6 rounds of Taxotere/Carboplatin plus Herceptin
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07-25-2007, 11:37 AM
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#12
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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I just had my last dose of Taxol this Monday and my last dose of carboplatin three weeks ago. A few weeks ago I cut all of my hair off. I even shaved my head. It was so scraggly that I just couldn't stand it. I was shedding everywhere. It is growing back in a little thicker than it was when I cut it. When I rub my head I feel like I am petting a terrier puppy. My eyebrows are coming back as well. All of my dark hair came out first as well, even in my eyebrows. And I too look like a skunk right now, dark on top and white on the sides. But I never lost all my hair like so many people seem to. I still have to shave my legs, etc. I was kind of looking forward to missing that.
I do not like wearing a wig and hats aren't always comfortable. Scarves don't fit well. I looked for a long time and finally bought a do-rag , took it apart and made a pattern. They don't come in much variety. I went to the fabric store and bought some fun fabrics (a guy at chemo monday said I looked like a pirate, I was wearing the black one with bright giant jewel toned bugs on it) and I have made several. I am trying to make one to give away everytime I make me one. I found that McCalls has a pattern for them under men's uniforms with a pattern for scrubs. They are pretty comfortable and fairly easy to make if you have any experience at all.
I have found that I am not as self conscious as I thought that I would be and have caught myself almost forgetting my hat when I get out of the car to go in somewhere. My grandchildren have gotten used to me bald around the house. We joke about my bad hair days-all of them. I guess the neighbors are getting used to it, too. It is hot here in MIssissippi.
Leslie
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