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07-13-2007, 01:00 AM
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#1
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Oncotype: Ins denial
For those of you who had the Oncotype DX testing done, could you tell me if your insurance paid for the test?
My insurance denied payment based on the rationale that there is no scientific evidence that the Oncotype Dx test improves health outcomes nor is it the standard of care. They said while the National Comprehensive Cancer Network has extensively researched the tx of bc, including the role of Oncotype dx testing in risk stratification and tx decision making for early-stage invasive bc, a definitive recommendation has not been made for its use in this clinical setting. They noted that medical literature reflects that further studies are required to determine the role that prognostic marker studies such as the Onco dx have in guiding tx decisions for pts with early-stage invasive bc. Therefore the test is considered investigational and not a covered benefit.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-13-2007, 05:12 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Keep pushing your insurance company and have the Oncotype DX company push too. There is NO ONE I have met who had this test have insurance cover it from the get go. But all eventually succeeded in getting it covered by their insurance via appealing. Insurance will try to not pay for such things (wigs included) but they eventually will.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-13-2007, 07:04 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Maryanne-
I hope insurnance pays for it for you - keep pushing!
But as I didn't have the test done, I was nost intrigued by Becky's answer about the wigs - I never pushed my ins. co. and ended up paying for it myself. My hair is rapidly thinning on abraxane, and am wondering if I should push the ins co to pay for a new wig...
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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07-13-2007, 07:57 AM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Regarding insurance not paying for wigs - this is the first time I've heard that. I thought that if your doctor wrote you a prescription for a cranial prothesis your insurance would pay for it under durable medical products. I would check your insurance coverage. I know my insurance pays for dural medical products but only 80%. This also applies to any sleeves required for lymphedema and breast prothesis. Most insurance companies have durable medical product coverage of some sort.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-13-2007, 08:28 AM
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#5
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Guest
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I had a script for a wig and my insurance still rejected paying, but I really didn't mind, as aside from $750, it was the only other thing I paid for in my first year of treatment.
I wonder if I should have questioned the decision not to pay.
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07-13-2007, 04:27 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I questioned, questioned, questioned about my wig. I was even told by my insurance they covered it (at certain places) but since I lived over 150 miles from the closest "approved" place, I could go anywhere I wanted. I was smart enough to get the person's name. Then they denied they said this but the conversation was taped on their end. It took 8 months but I got my money. If this happened to 1000 other people who didn't push for what they were entitled to, the insurance company makes 500,000 dollars (and it goes right to their bottom line).
Push
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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