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Old 06-14-2007, 12:36 AM   #1
LOPSIDED
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Its 2:30 A.m.---can't Sleep

I'VE BEEN HAVING TROUBLE SLEEPING FOR AWHILE NOW.......I REALLY DO NOT WANT TO TAKE SLEEPING PILLS. DOES ANYONE HAVE SUGGESTIONS THAT DO NOT INCLUDE MEDICATIONS?
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SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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Old 06-14-2007, 12:45 AM   #2
Merridith
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Smile

Hi there:

What I usually do is read something.

That takes my mind off whatever it is that I'm thinking about so that I can relax and go to sleep.

If you are really serious about getting to sleep, pick up something useful like a textbook and tell yourself that since you are up you may as well study............you'll go to sleep in a flash.

My next bet is to get out of bed and walk around a bit, maybe play some free cell for about 1/2 hour. That can help put you to sleep too.

Good luck!
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Old 06-14-2007, 02:05 AM   #3
R.B.
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Melatonin is suggested by some to assist in the induction of sleep.

Here is a link. http://www.ahrq.gov/clinic/epcsums/melatsum.htm

Sleep is a complex whole body thing so stimulants late in the day eg caffine, or high levels in the day may have an impact.

Improving diets balancing omega threes and sixes, looking at body acidity, salt intake etc. exercise may all help.

http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_docsum Nature is very complex for example I have read some salad vegetables have substances in that induce drowsiness so a wide variety of food should help provide the body the things it need to do the things it does.....

Melatonin is "controversial". There is some evidence it is an antioxidant and may reduce BC risks but again that is not well trialled. So please discuss with your advisor.

You will find lots on google on the subject of melatonin.


RB
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Old 06-14-2007, 04:09 AM   #4
StephN
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Some Herbal teas are specially blended to help with getting and staying asleep. My hubby finds that white wine late in the evening tends to keep him awake for some reason. Doesn't bother me that way.

Also, some ladies here had posted in the past about TYLENOL PM helping them get a good night's rest.

Good luck.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-14-2007, 04:35 AM   #5
KellyA
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Hi there! I can relate to your sleeping difficulties. I was having problems myself and didn't want to take any more meds. I started walking in the evenings with a good friend. We go at 8 pm every night and walk for about 1 1/2 hours- 6 or so miles. She is a lunatic runner and doesn't give me any breaks. (in her words- "chemo schmemo") I cannot tell you how much this has helped me with EVERYTHING. I fall asleep every night within 5 minutes of hitting the pillow. I don't need naps during the day anymore. I stopped taking my Lexapro (antidepressant) and feel WONDERFUL. My stress levels have gone way down. I can even run a good chunk of it now (I could barely finish it walking a month ago.). I bought me some great shoes and it has really become part of my life. I have even been able to go on a treatment day (usually I sleep the remainder of the day on those days) and for the very first time, I have not hurt ONCE in the entire three weeks of this last dose. And I was having BIG problems with that.


Find a friend, go in the evenings when its cool, and I promise that you will sleep like a baby!

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 06-14-2007, 05:47 AM   #6
Mary Anne in TX
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Walking does it for me! I get up and my little dogs take me for a walk each morning early! It makes everything in my life better, especially sleeping. ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 06-17-2007, 07:48 AM   #7
Catherine
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Lots of great ideas on sleep. For me it is 1. change beds, sometimes I sleep in 3 different beds through out the nite. 2. I snack on Corn Chex. 3. I dose to the t.v. I agree walking is very theraputic. I also still take Lexapro an antidepressant.

Luckily, I sleep quite well now. I have been done with chemo since Sept 06. Now just on Herceptin.
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 06-17-2007, 10:57 AM   #8
hutchibk
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Turn off the computer an hour or two before bedtime. Walk briskly at least 30 min a day. I too have a self-guided relaxation tape from my counselor. It is wonderful and can be very helpful. Sometimes my problem is falling asleep, and sometimes it is staying asleep. It can be very frustrating.

I get a hangover from Tylenol PM (it's just a big dose of benadryl with acetominophen). I also get a hangover from Ambien and Melatonin.

I take Lunesta when needed. The lowest dose possible. I love it. I wake straight up 8 hours later, no hangover, bright and energetic. I never take it more than 2 nights in a row to avoid any chance of dependence.

I didn't want to take sleep aids either, but my sleep was so erratic due to chemo effects, and I was becoming sleep deprived... so I caved in and am really glad I did.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 06-18-2007, 11:14 PM   #9
harrie
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To me a good night's sleep is VERY important. Decadron was keeping me up and to counter that I took an over-the-counter sleep aid such as Sominex or Tylenol PM. One pill worked just fine for me.

Exercise helps keep my stress level down and when I am not stressed, I tend to sleep much better.
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 06-20-2007, 06:49 AM   #10
kristen
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Rozeram (sp) the one with Abe Lincoln and the, is it a beaver? It's prescription, but also the main ingredient from what my doc told me is higher levels of melatonin. Nothing worse then not sleeping. Good luck.
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Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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Old 06-20-2007, 11:00 PM   #11
Sherryg683
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You need your rest and if it means taking a sleeping pill then by all means do it. I take ambien every night , if i didn't I would be awake all night. I figure with all the chemicals and drugs I've been on, what would a sleeping pill hurt...sherryg683
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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