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Old 06-03-2007, 11:10 PM   #1
Jean
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Join Date: Oct 2005
Location: New Jersey
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Please give 2 cents worth...

Asking this question for another memeber...How many of you took COQ-10
during your year of herceptin? Did you discuss with your onc and did he
approve?

Thanks All,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 06-04-2007, 04:12 AM   #2
Mary Jo
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I did not take CQ10. I did not take supplements whatsoever during chemo, radiation or herceptin. But did exercise a lot and wonder if that helped keep my heart strong??


God' Peace shine on you today,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-04-2007, 04:35 AM   #3
jhandley
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Location: Melbourne Victoria Australia
Posts: 330
Smile I take Q10

Hi
I take 200 mg/day of Q 10. I am on 3 weekly herceptin. NED for 1.75 yrs after liver spot dx in 2005. First dx in 2001.

I found an article which talks about Q10 acting on the bcl-2 gene and then another article which talked about a molecule with a similar action which was synergistic with herceptin so I am taking an educated guess in saying that it is OK to take with herceptin and may even make it work better.

I also take it to protect the heart and because it crosses the blood brain barrier quite well so can exert its anticancer effects there. I cant take more than 200 mg a day because it makes me so alert I can't sleep.

Cheers
Jackie

The most important things I take are Q10 and omega 3 fatty acids.
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Old 06-04-2007, 07:07 AM   #4
Yorkiegirl
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I took 300mg of COQ10 daily while on Herceptin and to this day still take it.

My Onc did say it ws OK for me take it.
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 06-04-2007, 07:21 AM   #5
Patb
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I also take COQ10 and am on herceptin until December. My Dr. said ok.

patb
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patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 06-04-2007, 07:27 AM   #6
LAURIE
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I take 100 mcg of CoQ10 a day. My oncologist has never mentioned to me about any supplements I take. They are always written on my chart, but I'm not sure he even looks at them. My cardiologist said "I was on my own," when I told him about the fish oil and the Coq10. He did say that he thought the fish oil would reduce my cholestrol. I started taking CoQ10 after a muga of a 53. My latest went tup to a 55.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 06-08-2007, 06:58 AM   #7
Lee
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I take 200mg of CoQ10.

I'm on Herceptin indefinitely, every 3 wks, and so far my MUGA has been great. My onc is fine with me taking it (and all the other supplements I take!)
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