kat in the Delta

[kat in the delta]

Anyone taking Zometa because of low bone density and/or to prevent bone metastat. ??? kat in the delta

[tricia keegan]

Kat my friend and I are taking part in a clinical study to see if this can help with prevention of mets for early stage bc.

She gets the Zometa once a month and says it gives her flu like symptoms but I was chosen for the other group who just take Calcichew!
Tricia

[kat in the delta]

I too got the flu-like symtoms with fever of 101 at first...I still get the aches and pains without the fever....Do you know the name of the trial ?? Let me know if or when you find out. Thanks, kat in the delta

[Barbara2]

I still have my port which was left-over from Herceptin. My onc told me to hang on to the port.

So I've been thinking of getting the Zometa insted of taking the oral meds that I'm taking now. He said I could have it if I wanted it. He also mentioned that he has given it to many many people without many side effects. Whenever I ask him about side effects, he doesn't seem to be too aware of them. Maybe people don't complain enough!

I'm seriously considering the Zometa, as it may prevent bone mets. I sure hate to start something that makes you feel sick, though. The oral meds for bone loss cause some muscle aches and bone pain, but it is something that I can tollerate.

[Barbara H.]

I had a bad reaction the first time I had Zometa. The next morning I went to school but had to leave by 9:30. I had fever and my whole body ached. I was in bed for three days. After that I would ache, but Advil allowed me to function. I started Zometa last year at the end of March. I just had it again last Thursday and I didn't even need Advil. I think your body gets used to it after a while, and there are people that don't have the reaction I had.
Good luck,
Barbara H.

[tricia keegan]

Hi this is the name of the trial but we live in Ireland and my Onc is doing this research so probably no help to you!
Tricia