Hair growing slowly: Herceptin or Imagination!

Kimberly Lewis · 01-30-2007, 02:30 AM

It took awhile for mine to start growing at a normal rate. Now I really need a haircut. I have a permanent "perm" too! Had heard that this could happen but wow... Hope you like your new hair when it finally gets out of the gate. What an adventure huh?

tousled1 · 01-30-2007, 06:27 AM

My hair is very slow growing but is coming in much thicker and much, much straighter than it was before I was diagnosed. I've had my hair trimmed 2 times and this last time we actually had enough hair (about 2 inches) to cut it to somewhat of a style for growing in. Be patient, hair does come back. The worst part is that you have to start shaving your legs again.

Lani · 01-30-2007, 09:07 AM

you might want to look at a thread I started called side effects of herceptin real or imagined and one started by RhondaH on what side effects got better when herceptin was finished(unless you think you may be a bit of a hypochondriac OR just suggestible and will come down with all of the side-effects after reading!)

Many took the time to post rather extensive descriptions. Many tried to separate out as best they could if the side-effects could be due to late changes from chemo ie, listing whether they started herceptin while on chemo, shortly thereafter are quite a while thereafter, or from antihormonals.

I think someone brought my thread "back to life" recently and I don't think Rhonda's has been gone long.

01-30-2007, 10:20 AM

That's what so irritating. I've shaved the hair on my legs twice now, and it's longer than the hair on my head! Doesn't that seem unfair some how.

Sheila · 01-30-2007, 12:23 PM

Grace

When I was at SABCS, I went to the Genentech Booth and also a luncheon with Genentech oncologists and researchers...I mentioned by runny nose and watery eyes as a Herceptin side effect....they had not heard of it. Seems the drug company does not know all the side effects as of yet, and maybe are waiting to confirm that some of these are indeed Herceptin related.

Lani · 01-30-2007, 05:44 PM

(as a guest as I own no stock) they talked about do a lot of post-marketing surveillance as required by the FDA, but I have heard of little evidence of it.

Once we get a certain number of responses I think we should print them out and send them to the right department at Genentech ie the one in charge of post-marketing surveillance. These are not life-threatening side-effects, but
the data should be collected and dispersed.

Thanks to everyone who has added to the thread so far.