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01-16-2007, 05:03 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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My Daughter Sherry
<TABLE class=tborder cellSpacing=0 cellPadding=6 width="100%" align=center border=0><TBODY><TR vAlign=top><TD class=alt1>I received this Email today along with a request to post it here:
Joe,
I dont know how to post. I have been visiting this webite since my daughter Sherry was dx april 04 with breast with innumerable mets to her liver. In Nov. 04 she was dx with innumerable mets to brain. she had wbr, clinical trial with tykerb and then xeloda and herceptin which kept her stable for 11 months.
I want you to post this for me as I hope some of the brave ladies who are dealing with cns mets might benefit from what happened to her. On dec. 06, she gave up the long battle and went on to join her other brave sisters on the other side. It was not the brain mets, not the breast or liver mets that brought her down. but, we could find no way to treat the two mets in her spinal cord. They had been there since Nov. 04, and should have been radiated or cyberknifed long ago. No one told us how dangerous they could be. One was on c2 and other was on c4. both 1 or 1.50 cms. If you have any lesions on your spinal cord do not WAIT. Get them treated aside from your other mets. By the time she had symptoms it was too late. ;she was driving the middle of Nov. and Dec. 10 she was gone. This site was a blessing the us. bless all of you, gail prince, mother and advocate for the late Sherry Ciabattoni.5-10-62, 12-10-06 My heart is broken.
From Thankful
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A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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01-16-2007, 05:06 PM
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#2
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Our Heartfelt Symphathies
There is some pioneering work on spinal cord mets being done in Europe. We will post news as it is received. We lost our dear Mary from Tierrasanta two years ago almost to the day of Sherry's passing from the same diagnosis.
May she rest in peace among the Angels,
Christine and Joe
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01-16-2007, 08:39 PM
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#3
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Senior Member
Join Date: Dec 2005
Posts: 274
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With Sympathy
Dear Gail,
My sincere condolences on the passing of your daughter Sherry. You may have saved many lives by having this posted. May she rest in peace and may Blessings be with you and your family.
Sincerely,
Liz J.
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01-16-2007, 09:00 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 232
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Dear Gail,
You and your family are in my thougths and prayers. I am so very sorry for your loss.
Hugs,
Karen
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01-16-2007, 09:54 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Thank you and so sorry. Bev
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01-16-2007, 10:10 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Gail,
I am sorry beyond words for your loss. Your dear daughter will be remembered in my thoughts and prayers. Thank you for the warning, we will remember.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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01-17-2007, 01:31 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Dear Gail,
I am so sorry for your loss. Thank you so much for the info about the spinal cord mets............you may have saved numerous lives by posting this.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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01-17-2007, 01:43 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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May God ease your pain
Gail -
I am so sorry for your loss. We lost our friend and compatriot on this site Mary from the same spinal cord issues.
Love and Light
Mel
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Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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01-17-2007, 03:03 PM
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#9
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Member
Join Date: Nov 2006
Posts: 8
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My Sympathies
I'm so sorry for your loss of your daughter. I also lost my mother, Hope to this horrible disease on Dec.6th. She also had innumeral tumors to her right lung but did live for four years with chemo and Herceptin so I am so grateful for that. I miss her so much but I know she is not suffering any more. I will keep your daughter and your family in my prayers. Julissa
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