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Old 12-28-2006, 08:35 PM   #1
Angela
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Question Port Questions

They have scheduled me to receive a port next Thursday. What should I expect? Will I be able to return to work on Friday? Will I need pain meds? Any information will be appreciated.

Thanks,
Angela
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Old 12-28-2006, 11:05 PM   #2
tousled1
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Angela,

Getting your port in is a breeze. I had mine done without a general anesthesia -- sort of in a twighlight zone. You should not require any pain medication meds and should be able to go to work the following day. When I had my port put in I went to my surgeon's surgery center had the port put in and then went to the oncologist's office for my first round of chemo.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-29-2006, 01:06 AM   #3
Chelee
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Angela, I had no problems with mine either as Kate already mentioned. I really dreaded it and didn't want to do it but it was a piece of cake. I was wide awake and they just numb that area. (Mine is in my upper arm.) I just layed there while he put in it. I did NOT feel a thing.

As to what to expect...we are all different. But for me...I did have a little soreness in mine for a few days. It wasn't too bad though....just uncomfortable. But its done pretty quickly and I have had no problems with it since it was put in back in March o6. (Knock wood.)

I know I was told to keep mine clean and dry for a week I believe it was? But again...my port is in my arm unlike others that get theirs in the chest area.

Good luck...but don't worry about this...it really is no problem.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-29-2006, 04:04 AM   #4
tricia keegan
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Angela my port was in my chest and I had it put in with "Twilight" sedation although it completly knocked me out so I don't remember much.

I did have some soreness for 7-10 days but nothing too bad that would have kept me off work.
I just had mine removed after my last herceptin with a local and it was fine.
Good luck.
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-29-2006, 06:06 AM   #5
janet/FL
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I was shoveling rocks the day after I had my port put in. Later I read the insturctions and they said no heavy lifting for 48 hours! No problems at all.
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Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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Old 12-29-2006, 06:41 AM   #6
KRISS
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I have a question following this line. I am assuming I will get a port. How do you keep it clean and dry. I am a zoo keeper and am around flying crap and hay and dust all day. I'm starting to worry with the heavy lifitng and poop I may have some problems.
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DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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Old 12-30-2006, 11:51 AM   #7
LAURIE
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I have a port installed above my breast and before hand thought I can't stand the thought of having this thing inside of me. I was even concerned about the little scar. I rememeber asking my surgeon about the scar and I could see the look on his face like "you just wait till your surgery" That was in last August. So if your feeling this way it's normal to me. I guess I am okay with it now. It only midly hurt for a few days afterwards and it is really easier for surgery, nurses and easier for us too. Trust me I am really a wimp when it comes to pain and it is not that bad. I told my surgeon that if I can take something for pain I always will. I took a couple vicodin for a couple days later. After my chemo treatments I complained of my collar bone (and lower, in the port area) hurting (I even thought it was swollen) and they did an x-ray. It was fine. I am just real sensitive to any pain and just geting stick in my port was enough for me to complain about. Even now I am so aware of every ache and pain in my body. I think I am getting better about what is normal and not as much of a complainer anymore (I am sure my husband would agree with that). What I am trying to say is that if you read all these posts and you still don't like the idea of having a port it's okay. Why would anyone want it, if they don't have to. But the fact is we have to, and we do it because it is the best thing for us to do. So if you have any pain after your port placement and think your a wimp because you do, who cares. Let yourself feel that way.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 12-30-2006, 12:05 PM   #8
KellyA
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Hi there. My port is also on the inside of my upper arm (they called it a passport (sp?)). I was scared to death when I went to get it put in- and needles don't usually bother me. I was completely awake for it and other than the IV, and a little numbing medicine at the site, I didn't feel a thing. It went in pretty quickly also. Afterwards, it was a little sore, only if I touched it. As a matter of fact, I kept forgetting that it was there and was using my arm to shut doors and all and would quickly remember when the pain hit!! The tenderness went away after a few days and it did bruise a little, but not too bad.

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 12-30-2006, 12:36 PM   #9
tousled1
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Laurie,

If it bothers you when they stick you for chemo you can ask your oncologist for a prescription for "Lidocaine Cream." I have it and I just put a blob of it on the port and cover it with a small piece of plastic wrap about 1/2 hour before chemo. Alas, no pain when they stick you!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-31-2006, 12:54 PM   #10
Adriana Mangus
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Stay home

I had a port put on 3 years ago, mine got infected and it had to be removed. I would stay home, what's the rush? We're not indispensable, believe me. Take care of yourself, once you get better then you can go back to your normal life.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 12-31-2006, 04:57 PM   #11
Chelee
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Kriss, As to keeping your port clean...I am not sure about the ports that are placed in the chest, but mine was put in the upper arm where you would put a blood pressure cuff. For me...they put these BIG CLEAR square patches that had adhesive on the backs of them and boy do they stick! Totally sealed off from moisture, dirt, etc. It wrapped all the way around my arm. They told me to keep it clean. And believe me...with these big sheets of adhesive patches it was easy to keep clean.

They gave me extras to take home so I could put news ones on it when needed. I am not sure if they use something like this for the ones that go in the chest? But I am sure someone here can tell you how they deal with the ones in the chest area.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-31-2006, 08:11 PM   #12
Soccermom
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Dear Kris,
I believe the patch that Chelee is referring to is called Tegaderm.I had an external port originally (subclavian catheter) and had to keep it "dressed" 24/7. The coverings for that were sold to me by the medical supply dept. at MDAnderson (who implanted cath w only alocal anesthetic). When I ran short my local pharmacy sold me the Tegaderm which was trickier to work with (like saran wrap w glue!) but did thejob as afr as keeping cath dry and clean.
I had that removed in June 0f 2005 and replaced with an implanted port (BARD) which I still have (hopefullythey will give me the go ahead in June to remove!). I FORGET that its there, REALLY! I have been fortunate to not have had one single problem (knock wood) and have never had to cover itto protect it. I am just sorry I didnt know to ask about a pediatric sized port as I have no extra "meat" on my chest to pad it.
I hope your experience w a port is as noneventful as mine!

Marcia
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Old 09-24-2007, 12:52 PM   #13
sdhaem
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Talking

I have had two chest ports ,,, completely under the skin.. and you just care for it like your skin... my first one from day one was uncomfortable and I ran a low grade temp then it started looking red around it.. and Doc said it had to come out it was infected,, they said it was no fault of mine, sometimes that just happens.. the second one (Bard) put on the other side of my chest ,,I have had no trouble with... don't know its there... I wish to they could use it for more uses, like blood tests... and for the IV's when they do Muga and CT's but I guess those people aren't trained to use them ...
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Old 09-24-2007, 01:13 PM   #14
Brenda_D
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I had my chest port put in last January. They used Twilight sleep, and I don't remember anything after the anesthesiologist said "and now you will get some nice happy juice". Lol
My port area was sore for awhile. Mostly because I kept laying on that side during sleep, and pushing against it.
I don't know if my port is getting closed off or what, but they haven't been able to draw blood from it, and last time I got Herceptin, the nurse had a hard time "pushing" the first flush in.
Otherwise, I'm happy to have it and not have them dig around to find a vein every time I get a treatment.
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Old 09-24-2007, 10:20 PM   #15
Joanne S
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Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 09-24-2007, 10:27 PM   #16
Joanne S
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I have an implanted port in my chest just as shown on my previous post.

I hope you find this information helpful. Best to you.


http://www.webmd.com/a-to-z-guides/Central-Venous-Catheters-Topic-Overviewfficeffice"

What is a central venous catheter?>>
A central venous catheter, or vascular access device (VAD), is a long, thin, flexible tube used to give medications, fluids, nutrients, or blood products over a long period of time, usually several weeks or more. The catheter is inserted through the skin into a vein often in the neck or chest. It is threaded through the vein until it reaches a large vein near the heart.>>
>>
>>
What types of central venous catheters are there?>>
There are several types of central venous catheters.>>

· A PICC (peripherally inserted central catheter) line is a central venous catheter inserted into a vein in the arm rather than a vein in the neck or chest. >>

· A tunneled catheter is surgically inserted into a vein in the neck or chest and passed under the skin. Only the end of the catheter is brought through the skin through which medications can be given. Passing the catheter under the skin helps keep it in place better, makes it less restrictive of activities, and makes it less visible. >>

· An implanted port is similar to a tunneled catheter but is left entirely under the skin. Medications are injected through the skin into the catheter. Some implanted ports contain a small reservoir that can be refilled in the same way. Once filled, the reservoir slowly releases the medication into the bloodstream. An implanted port is less obvious than a tunneled catheter and requires very little daily care. It has less impact on a person's activities than a PICC or tunneled catheter. >>
>>
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 09-24-2007, 08:14 PM   #17
weezie1053
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Hard to believe, but I have had my ports for over a year now. Accessing the port will come second nature as brushing your teeth after while. I remember using the numbing cream, then I graduated to ice. Now, the nurses and I count "1,2,3" and pop the sucker in. Voila!

It will save your veins, and you will wonder what all the fuss was about a year later.

Louise
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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