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Old 12-25-2006, 08:43 AM   #1
madubois63
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message from madubois63

It has been a while since I've posted (sorry). I killed my daughter's laptop while in the hospital (she doesn't know yet) and I've been really tired and also crazy withthe holidays. I hope everyone is as healthy as they can be and is enjoying life to the fullest. I know how hard that can be. Today, I am 52 days POST bone marrow transplant!! I have done very well so far. I have had minor reactions due to some of the MANY medications I am on. My body can't keep magnesium. I take these huge mag pills 4 times a day, eat pumpkin seeds and soak my feet in Epson salt (mag). My body shakes and I get terrible Charlie horse cramps, but this is doable compared to what I could be going through if I didn't have the transplant. My blood is still B+, but I have A+ characteristics - the war in my body has started. This is a good thing. I do get blood transfusions every week (normal at this stage in the game). I drive myself (freedom - yeah), I do light cleaning, food shopping and cooking. I have to rest a lot and do take naps every once in a while. A nurse told me I should be getting more energy after day 60 or so. I got a LOT of financial help for Christmas this year and was able to get almost everything the kids asked for. Roswell Park's Pastoral Care sent me a HUGE shippment (3 big boxes) of food and gifts for the kids. A local grassroots organization sent me a huge check for gifts and a local church gave me gift certificates for food and Wal-mart (my favorite store because they have those electric carts - look out). This Christmas would have been special even if there were nothing under the tree, but it is especially wonderful knowing there are such GREAT people out there to help. This has been a very hard 2 years for me, but it has also been very special. I have gotten such GREAT support from the ladies regularly soon. January 12th marks my 7th year of survivorship!!!! It's been a hell of a trip, but somehow I've come out of this a better person. I wish you all the most joyous wishes, dreams and life. I wish I could hug you all and tell you each how special you are to me.
with all my love....

-:¦:-Maryann -:¦:-´´
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 12-25-2006, 12:29 PM   #2
Karen W
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Maryann,

Your message brings tears to my eyes because of your courage and strength.

Thank you for posting and letting us know how you are doing. I pray for peace and strength for you and your loved ones during this holiday season and the new year.

May all your dreams come true.

Hugs and healing prayers.

Karen
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Old 12-25-2006, 02:37 PM   #3
Sandy H
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Maryann it is so good to hear from you. Glad it is finally behind you and you are moving on. Hope this new year will bring you peace and comfort as well as new energy and healing. Thanks for updating us during such a busy season for you with so little energy. Sending you and your children a big hug. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 12-25-2006, 03:32 PM   #4
Mary Anne in TX
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Maryann your news is so good! And your blessings are so deserved! Your great attitude about your transplant was such an encouragement to me! May you be blessed 7 X 7! Enjoy the day! God bless you!
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-25-2006, 03:51 PM   #5
tousled1
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MaryAnn,

So good to hear the good news! You have been and continue to be a true inspiration. I admire your courage through all that you have experienced. Wishing you a Happy, Healthy and Prosperous New Year.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-25-2006, 03:55 PM   #6
lindaw
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Dear Maryann

So good to see your post. I am glad your Christmas went well. Rest and enjoy the holidays with your family.

love
lindaw
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Old 12-28-2006, 11:16 PM   #7
Leslie's sister
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happy for you

MaryAnn:

I have been reading your posts and looking forward to hearing that you continue to do well. You are an incredible human being, having been through so much. You continue to fight with a strong spirit and are an inspiration to anyone, even those of us w/o cancer. It is so wonderful to read that things are going so well for you. Please continue to post with updates. I pray for all the best for you and your family.
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 12-30-2006, 07:29 PM   #8
Her2nSue
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Smile

Maryann,

I'm in agreement with every post I've read saying that you are beyond courageous, you give me and others strength through your courage with all that you have been through. It was wonderful to know that you were able to go home for Christmas and enjoy your family through the holidays. May your strength continue each day in the new year and enjoy your foot soaks, naps and seeds! A congratulations toast will be in your honor for being a strong 7 year survivor when I ring in the New Year at midnight tomorrow.

Sue
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Old 01-04-2007, 01:51 PM   #9
rinaina
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I can't thank you enough Maryanne for being such a strong inspiration to all of us. I tell myself daily, "If Maryanne can make it through all she has, then I can keep going and appreciating everyday that is given to me. I am a very fortunate woman to have been diagnosed early on however we all know the quirkiness of this her2 thing. I am so happy that you are doing as well as can be expected and that so many came through for you and your family during this time. Please take care and do not over do...sounds like you are doing so much already. You truly are incredible.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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