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12-15-2006, 12:36 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Update On Carol H from Dundee!
Hello everyone
I visited Carol in hospital and she wants me to thank everyone who replied with good wishes and prayers for her.
She has just learned the brain tumour is operable and will be undergoing surgery next Tuseday.
Although a very scary time she's being very brave but missing her children and freedom and going a little stir crazy as the tumour is preventing her reading and doing her beloved crossword puzzles (Dizzy spells and can't focus) so she's
pretty bored with too much time to dwell on things.
At this stage thats all we know but will update more at Carol's request and thank you all again and I just pray all goes well Tuesday for her.
Carol is only 38 and has two young children and her husband cannot be with her due to work commitments but will probably get compassionate leave to travel from Scotland to be with her Tuesday.
Good wishes to all.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-15-2006, 12:55 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Tricia...
thank you for some MUCH needed good news. Now lets pray that the good news continues for her and for others. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-15-2006, 06:17 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Thank you Tricia for the update. Here's hoping that Carol's surgery goes well and that she'll soon be back with her family. I'll keep her in my prayers
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-15-2006, 11:21 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Tricia, thanks for the update. Will continue to send prayers for successful treatment for Carol and hope that she will be back home with her family soon.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-16-2006, 02:31 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Thanks Tricia. We are hoping for the best result after surgery. I see her with her children and happy, I know in my heart the surgery will be a success!
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12-16-2006, 05:16 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thank you ladies!
Surgery has been moved to monday as Carol has very bad headaches and dizzy spells so you're good wishes are so appreciated.
She had a visit from her children today which was wonderful for her but upsetting also so here's to Monday and will update you all later in the wek.
Thanks for all your replies!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-17-2006, 09:17 AM
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#7
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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so glad
to hear that the tumor is operable. I'm sending Carol a lot of love (I'm 39 with 2 young ones and stage IV-so I get it!). Thank you for keeping us updated, especially since, if I rmember right, you are having some challenges too. How are you Tricia?
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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12-17-2006, 12:20 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Joy and thank you for your good wishes and of course thanks to everyone else too as I know Carol will gain strength as she recover's from her op knowing she has so many friends willing her well again.
Happy to report I'm doing fine so far although I did have a few problems and a bit of a scare two weeks ago with suspicion of lung mets but thankfully it seems clear and my onc says no evidence of that.
It seems my problems are related to years of smoking so armed with my patches I'm ready to finally win this particular battle after Christmas.(Finger's crossed)
Joy I know Carol will enjoy swapping stories with you when she gets back as you both appear to have a lot in common .
Tomorrow's the big day so will update as soon as I have any news.
Wishing good health and blessings to all our sister's
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-17-2006, 06:18 PM
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#9
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I am praying for a successful surgery. I hope all goes well. Please keep us informed.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-17-2006, 07:46 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I'm sending good vibes so that Carol's surgery will go smoothly. Tricia, I'm glad that you do not have mets to the lungs. You are and have been a great support to Carol. Prayers coming your way for both Carol and you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-23-2006, 01:51 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Further update-
Carol was sitting up for the first time since her op today and eating ice cream!
The bad news is that the surgeon could only remove about 40% of the tumour without leaving her with brain damage so at this stage we're hoping and praying again the chemo/rads will get the remainder.
Her bone mets have also begun to give more trouble so we're just waiting to see if her onc will leave her on herceptin as it may have stopped working so well having done wonder's containing the disease for 3 years.
She seemed a little down to me,understandably and is miserable at having to remain in hospital over Christmas and not be there for her children.
I keep reminding her to think ahead of her new house and life just waiting for her which is worth giving up one Christmas if this is all sucessful.
Her hubby surprised her by arriving the night before the op unexpectedly though which she was really pleased with.
The onc has mentioned Temodar (sp?) for chemo but nothing definate at this point.
Thanks again to you all for the support and will post more news as I get it.
I wish everyone a happy and peaceful Christmas.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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