 |
11-28-2006, 11:28 AM
|
#1
|
|
Member
Join Date: Nov 2006
Posts: 8
|
Update on Hope-Please Pray
Hi My name is Julissa and I am Hope's daughter. I have been a lurkeron this board for some time but many remember my mom as an active particicpant in the past. Sadly she is not doing well and is now in hospice care and I really feel that the end is near. Both myself and her companion live in the house and we are trying to keep her comfortable as possible. She is on hydromorphone for pain and ativan for anxiety but is conscious for most of the day. Right now her right lung tumors are really progressing, brain and bone mets appear to be stable
I am trying to be the best advocate for her care for the 4 years after being diagnosed at stage 4 in Oct. 2002 but there is no more chemos to try as she has tried them all and is too weak to repeat them. I have checked into the Lapatinib EAP trial but infortunately she is so weak that she is ineligible to be on the study. BTW the protocol states that you have to have a ECOG status of a 2 and she is a 3 now.
Hospice has been a great support to us and as much as both her and I did not want to give up sadly we have run out of options. Please keep her in your prayers and I will continually update this board on her condition. Peace and Love, Julissa
|
|
|
|
11-28-2006, 12:49 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
so sorry to hear this news. sounds like Hope has a wonderful support system..lucky! Prayers sent your way
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
|
|
11-28-2006, 01:54 PM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Hi,
Sorry to hear this news. My thoughts are with you and with her.
Barbara H.
|
|
|
|
|
11-28-2006, 01:58 PM
|
#4
|
|
Senior Member
Join Date: Mar 2006
Posts: 306
|
Dear Julissa,
Thank you for sharing this sad news with us... I have wondered how your mom was doing.
Please give her a hug and kiss from me, a fellow brain metster and occasional poster to your mom.
Hoping for good moments in the days ahead for you all.
pattyz
|
|
|
|
|
11-28-2006, 02:18 PM
|
#5
|
|
Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
|
Julissa,
Just wanted to say I will keep you, your mom and your family in my prayers.
May peace be with all of you during these difficult days.
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
|
|
|
|
|
11-28-2006, 02:19 PM
|
#6
|
|
Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
|
I am sending prayers your way. So sorry to hear the sad news about your mom. This disease is horrible even with all the advancements, we are still losing too many. Your mom is so lucky to have you with her all this time for support and love. Hospice is wonderful in cases like this. I hope they can keep your mom comfortable. My heart goes out to you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
|
|
|
|
|
11-28-2006, 03:23 PM
|
#7
|
|
Senior Member
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
|
Dear Julissa,
I am so very saddened to hear about your mom. All of you will be in my prayers as you struggle through this terrible time. I pray for your peace and that your mom will be comfortable, feeling all of the love that is surrounding her. Never stop praying for a miracle!
Take care,
Karen
"The Good Lord gave us mountains, so we could learn how to climb!"
|
|
|
|
|
11-28-2006, 04:05 PM
|
#8
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
May God's Peace surround you all and hold you close. My heart can feel your sorrow and I send a hug your way.........from my heart to yours.
Blessings of Peace I send .......
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
11-28-2006, 05:05 PM
|
#9
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Julissa,
My prayers are with your mom and your family. Peace be with you at this tough time.
Hugs and Prayers,
Lexi
|
|
|
|
|
11-28-2006, 06:38 PM
|
#10
|
|
Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
|
Julissa...
Done...Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
|
|
|
|
|
11-28-2006, 07:39 PM
|
#11
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Julissa,
I'm very sorry to read this sad update on your mom. She's very fortunate that she has you for support. Just remember - miracles do happen. I will keep your mom in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
11-29-2006, 12:30 PM
|
#12
|
|
Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
|
so much love to you and your family
Thank you for the update. With all you have going on it is very meaningful that you took the time to post. Take good care of yourself as it is evident that you are taking great care of your mom already.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
|
|
|
|
|
11-29-2006, 02:55 PM
|
#13
|
|
Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
|
Yes, hospice is a good thing. I am glad your mom and your family are getting support from hospice. I am sending up prayers. Your mom has a beautiful and appropriate name.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
|
|
|
|
|
11-29-2006, 04:16 PM
|
#14
|
|
Senior Member
Join Date: Oct 2005
Posts: 476
|
Julissa,
My prayer is for you and your family. Peace and tranquility be with all of you. God bless you.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
|
|
|
|
|
11-29-2006, 04:46 PM
|
#15
|
|
Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
|
I'm so sorry with this sad news. You and your family are in my thoughts. Be strong for her.
Big hug,
|
|
|
|
|
12-02-2006, 12:51 AM
|
#16
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Doing your best --
-- and thanks for your post, even though the news is not what we wished for your dear Mom. She was helpful and supportive here when she could be, so we try to return the favor.
Just feel bad that she has become weakened to the extent that she can not even get Tykerb. But really glad to hear the brain involvement is stable. She was supportive to me during my discovery of brain mets and problems with the steroid from "heck."
Let her know that we are all praying and sending her good wishes as she faces this time with the loving comfort of her family.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
12-02-2006, 03:15 AM
|
#17
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
So sorry
I'm so sorry for you and your Mom facing this but know I'll be praying for you all.
Thank you for taking the time to update us.
Tricia
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:44 AM.
|
Hybrid Mode