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Old 11-24-2006, 03:39 PM   #1
Patb
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Herceptin Treatment
I am new to Herceptin and am having it weekly for 30 minutes after the first
loading dose for 90 minutes. How long do you have to take benedryl with the
treatments because this ruins my whole day and I can't drive and can barely
stay awake.
Thanks for any information on this.
Patb
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Old 11-24-2006, 03:43 PM   #2
Chelee
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Once they do your loading dose and find out you don't have any reactions to herceptin...you should be able to do the rest of them without benedryl.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-24-2006, 03:53 PM   #3
tricia keegan
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My Dr insisted I have Benadryl for every treatment and like you it just put me asleep for the day.

I think he was just being over cautious!
Tricia
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Old 11-24-2006, 03:57 PM   #4
panicked911
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I had a full dose for the first laoding dose. For the second dose I convi ced the doc to cut it in half. By treatment 3 I flew solo without it. You eed to be your own advocate. Speak to the doctor directly about it and make your argument for foregoig it logical and persuasive. Chances are she will not order it.


Good luck.

Susanne
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Old 11-24-2006, 04:02 PM   #5
chrislmelb
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I have never had Benadryl and I can't see any reason i'd even have needed it. I suggest you just tell them you don't want it.
Good luck
Christine
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DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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Old 11-24-2006, 07:36 PM   #6
kari
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Hi Patb,
I had my first Herceptin last week. The only pre-med the onc ordered was 650 mg. Tylenol. I had no reactions whatsoever of any kind. I had asked the chemo nurse about Benadryl, as I had heard some pts. get it, and she said they don't usually give it as a pre-med. Unless there is strong evidence for you to have it, ask about going without. Good luck.
Take care,
Karen

"The Good Lord gave us mountains, so we could learn how to climb!"
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Old 11-25-2006, 09:24 AM   #7
Hopeful
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Patb, I had benadryl, tylenol and an anti-emetic with my loading dose. I felt worse from the benadryl and the anti-emetic than anything else. Since I had no reactions to the Herceptin, I asked my dr. at the time of the second treatment to eliminate the premeds, which he gladly did. I am so sensitive to benadryl, I was not only out the day of the treatment, but "hung over" the next day. It was definitely the worst part of the treatment.

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Old 11-25-2006, 10:40 AM   #8
suzan w
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I never had any benadryl either...not even at loading dose.
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 11-25-2006, 11:45 AM   #9
chrisy
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I never had any premeds with Herceptin, and never had any problems. Try requesting at least a reduction in the amount, then when that goes well maybe they'll let you wean yourself completely!


good luck
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 11-25-2006, 10:37 PM   #10
Rendi69CA
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I need the bendryl. If I don't take it I will start coughing and my heart start beating fast. It depend with the person. Ask your doctor for half on your next treatment and work yourself off. If you have any side effect stay on it.
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04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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