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10-01-2006, 02:07 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Lolly !!!! It's Your Day
Happy Birthday !!!!
Christine and Joe
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A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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10-01-2006, 02:29 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 161
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Best wishes Lolly!
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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10-01-2006, 03:08 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Cheers for you!
Have the BEST BIRTHDAY EVER.
I know your hubby and family will see that you do!
Let us know how you are these days. Maybe you haven't had recent scans and they are coming up. Like to see you get off the chemo!
P.S. I have a friend who is having good results against her stubborn lymph nodes with Avastin.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-01-2006, 04:15 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Lolly
I hope you had a terrific day. Happy Birthday.
Becky
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10-01-2006, 04:19 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Happy Birthday Lolly
I see that it is your birthday - isn't is wonderful to see our birthday's come Lolly?
I savor every one.
Hope everything going well for you.
Take care and have a glorious B day.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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10-01-2006, 05:21 PM
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#6
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Senior Member
Join Date: Dec 2005
Posts: 274
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Happy Birthday
Hi Lolly,
Happy Birthday to you. Hope you enjoy the day.
Sincerely,
Liz J.
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10-01-2006, 05:52 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Happy Birthday Lolly!
I sure hope you have a GREAT day. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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10-01-2006, 08:31 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Happy Birthday Lolly!! I wish you many more happy and healthy birthdays to come!
Hugs,
Lexi
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10-01-2006, 08:34 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Happy Birthday. Always enjoy your posts. Many, many more. BB
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10-02-2006, 06:42 AM
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#10
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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@@@@@@@@
Happy
Birthday!
@@@@@@@@
Happy Birthday
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10-02-2006, 08:08 AM
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#11
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Happy birthday!
Hugs,
Karen
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10-02-2006, 08:23 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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A very happy birthday to you Lolly!
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10-02-2006, 11:23 AM
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#13
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I hope you have an awesome birthday and many. many more to come. Best wishes!!
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10-02-2006, 11:39 AM
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#14
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Looking for CINDEE
First, how could I not add my HAPPY BIRTHDAY WISHES TO LOLLY! Yes, I welcome everyone, as friends bemoan getting older. I try explain how each is a blessing. I know you, my sisters, get that. In fact, I embrace every single day! Wishing Lolly and all of us many reasons to rejoice.
Cindee had emailed me with stage 3 and Her2+ w/her mastec/hysterec/chemo/rads and wondering if she could now do anything other than worry. With a 7 yr old shes especially anxious. I was thinking, every 3 mnth blood tests, full range w/tumor markers are being taken I assume. I watch every #, save my own copies, check the normal ranges and question everything. Who has more time to be concerned about me than me? Even the best of docs are simply overloaded. Annual mammog goes without saying, but someone mentioned they also get a sono every time and that in between they get a chest MRI, which is more accurate. I went to my breast surgeon every 6 mnths, cause no one examines breasts better, until he retired. Haven't found anyone to my liking. Do self exams of course the first of every month. If you read my previous posts re my '98 liver mets story it should be a wake up call for all to monitor your own condition, keep files. I have blood tests, ECHOs, GYN stuff, Mammog etc. stuff all separated in chronological order, for comparison purposes. It's all in a big file I once called my CANCER file, which gave me the chills. Who would ever imagine including oncs in our phone books? After a yr I changed my file's name to WELLNESS. Survival is a mind set. I subtitled my file CANCER STOPS HERE.
Question. My new doc suggested a brain MRI, w/all the hoopla over BC mets traveling there. I knew they'd reported this at the San Antonio BC convention last winter. My doc wrote a script for same with and without contrast. When "I" reminded the cancer center that I needed a precert # (I'm 62 now, still not on Medicare, w/health insurance) -- the insurance co would only ok the brain MRI without contrast. After 3 people, the cancer center was told that IF they see anything, then they'd ok the test with contrast! It took me mnths to gather the courage to act and make the appt, for starters. I was afraid of the tube. Got a script for Ativan (2) to take before, to relax me. Had the test, aggravated w/the audacity of the insurance co and waited for results. Nothing seen but the report (which I asked for a copy of) said at the bottom that it was difficult to determine metastatic disease (as a metastatic BC patient/survivor) without contrast. Now I'm going to call my onc and ask what he thinks. Any input from you guys who are among the best informed and most caring human beings on the planet?
Still facing my 6 mnth pelvic sono, a colonoscopy (it's been 5 yrs) and of course my every 3 wk Herceptin -- giving over a 1/2 hr infusion by the way -- to add to my lengthy (SORRY ABOUT THAT, but 11 yrs of survival is a whole involved tale) post of yesterday. Man, it ain't easy being tough, strong, brave and determined -- smiling all the while. We're all heroes you know! Amazing SOULS with the Spirits of Warriors!!
With love,
ANDI
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