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08-29-2006, 09:04 PM
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#1
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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New Treatment Plan
My onc surprised me at my last visit 2 weeks ago by asking/confirming that I'd ever had radiation to the right axilla area, which we've been treating systemically with chemo/Herceptin for over a year now, with moderate success as the darn things keep "flaring" up. Since I've only had radiation to the left axilla, site of the primary bc, he thinks we should see if we can't clear the right nodes up with a course of rads. "Thinking outside the box" is how he phrased it, and I must say I'm excited after meeting with my rads onc last week. He's confident we can get this problem area cleaned up which will translate into a chemo break for me, hopefully a LOOOOONG one!
Had simulation yesterday, and will start a 5 week course in a couple of weeks. One small hitch, my port is on the right side, and if they don't think they can work around it I'll have to have one placed elsewhere, probably in my right arm. I'll ask my nurses this week about a pediatric port as I know they're smaller.
Will keep you posted.
<3 Lolly
Last edited by Lolly; 08-30-2006 at 11:29 AM..
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08-29-2006, 09:17 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Lolly,
I think this is a great idea, with Herceptin and rad you can become NED. I send all positive thoughts your way and wish for the best for you.
Love and hug,
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08-30-2006, 12:23 AM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Lolly
I had radiation to this area too on my right side which was also the side of my port but it caused no problems at all and the rad onc was quite happy to give me the treatment with the port there.Good luck with the treatments and I hope it works for you.
Tricia
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08-30-2006, 05:24 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Lolly;
How very exciting. Please do keep us informed of the results. I thought that you had mets to the clavicular area not the nodes on your other side in the armpit (sorry to sound simple but it's the only way I can be sure I'm correct as I keep mixing up "axilla" ....lol).
Best regards,
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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08-30-2006, 06:54 AM
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#5
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Lolly, does this mean you will have to be careful about lymphedema in both arms? Hope this works for you. If they suggested radiation for me I would be paranoid!! For some reason I am scared to death with radiation. I had 5 treatments and they stopped them because it made my skin mets take off like wild fire. I was so happy as I never wanted to go in that radiation room. I kept thinking of it as lightening striking me with those beams coming at me. Wishing you well, and keep us updated. hugs, Sandy
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08-30-2006, 07:00 AM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Lolly,
Here's hoping that the radiation will take care of your node problem.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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