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Old 08-19-2006, 06:32 AM   #1
Joe
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Location: Home of the "Flying Tomato" Carlsbad, CA
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Expect New Visitors
The HER2 Support Group has placed an advertisement in the latest issue of Cure Magazine which most of you will be receiving shortly.
http://curetoday.com/

I am looking for 2 volunteers to help me with the registration process. Hopefully one from Europe and the other on the East Coast. We have recently changed our member registration:
1. A member registers and is sent an email which must be acknowledged.
2. Upon acknowledgement, the prospective member is placed on a confirmation list.
3. We then go to the confirmation list and approve each member.

We had to put these measures in place to eliminate spam messages, it seems to be working as we have had no spam for the last twwo weeks.

Hopefully, we will see many new visitors to our website.

Regards
Joe
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Last edited by Joe; 08-19-2006 at 06:39 AM..
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Old 08-19-2006, 01:18 PM   #2
tricia keegan
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Location: Ireland
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I'm free!
joe I'm still off work due to treatments and so have a lot of time on my hands right now and will be happy to help if you need me to.

Tricia
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Old 08-19-2006, 09:22 PM   #3
Bev
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Ho Joe.

I may be able to help. On a MAC and not too savvy. If it doesn't take too much time, I check in most days. Bev
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Old 08-19-2006, 09:31 PM   #4
sassy
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Be glad to help if you like. I usually check in daily.
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Last edited by sassy; 08-22-2011 at 08:52 AM..
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Old 08-20-2006, 04:08 AM   #5
Sheila
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Location: Morris, IL
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Joe
I am willing to help any way I can, I am home all the time so let me know!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-20-2006, 06:43 AM   #6
tousled1
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Location: Acworth, GA
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Joe,

I am not working and would be more than willing to help out.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-22-2006, 04:24 AM   #7
sassy
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Joe
Are you still looking for someone to help with registration?
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