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08-05-2006, 12:42 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Wellsburg, WV
Posts: 26
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update on tykerb
Well, I met with the Head of Breast Ca treatment and research in Pittsburgh.
Right now, my bili is too high ( 8.2) less is < than 1.0. However he having sono and mri of liver done, hoping that bile duct is blocked and it's not my liver completely eaten with tumors. I will also have repeat labs done again and see him the end of the month. Fingers are crossed and I am PRAYING, PRAYING, PRAYING. Thanks for the swupport when I was down. Oh yea, he put me on fentynal patches, 25 mg. My appetite seeems a little better and losing weight a little slower.
Love and Thanks to all of you
sherry
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08-05-2006, 01:39 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Sherry,
Glad your appetite is better and hoping that you get good results on liver tests. Keeping you in my prayers.
Sassy
________
RoxanaCutie
Last edited by sassy; 08-22-2011 at 08:51 AM..
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08-05-2006, 08:06 PM
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#3
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Guest
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I'm praying for you and that your tests go well. And SO glad to hear you are doing better after that scarey encounter with your doc. Thanks for taking the time to post!
Love,
Dilly
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08-05-2006, 08:17 PM
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#4
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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very glad to hear your appetite is better!!!! I am praying for you that things go well!!!
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08-05-2006, 11:36 PM
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#5
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Sherry,
Hoping that things improve for you soon. Please know I'm keeping you in my prayers.
Kim in CA
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08-06-2006, 08:53 AM
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#6
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Praying Right Along With You Sherry
and wishing you a good outcome.
Stay strong my dear.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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08-06-2006, 12:32 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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In my prayers also...
with fingers and toes crossed. Good news that your weight loss has slowed and you have some appetite to get that stabilized. Hoping with you that the liver function improves soon. and that you get some more good news soon.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-06-2006, 03:07 PM
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#8
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Deceased
Join Date: Mar 2006
Location: Virginia
Posts: 113
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Praying Diligently
Sherry,
I am so glad to hear that your apetite is a little better and that the weight loss has slowed down. I will continue to pray diligently that all of your tests come back with good news and that your health continues to improve.
Sending lots of warm thoughts, well wishes, prayers, love and hugs your way,
Nicola
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08-06-2006, 03:59 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Sherry!
So good to hear that your weight is not dropping so fast and that you have great hope for the end of the month tests results! I'm hoping and praying along with you and think of you daily. Happy eating!
Mary Anne
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08-06-2006, 04:27 PM
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#10
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Guest
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I am also praying for you--- we all have to send much support to one another
Good luck
Carol
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