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Old 07-09-2006, 05:35 PM   #1
dawn
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Location: Newfoundland, Canada
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Wink Bravo for this site and all its members

I was diagnosed in Feburary 2006 of IDC. Since then I didn't know where to turn, what questions to ask of my specialists, what to expect of treatments, What exactly my treatments where for that matter? Not to put down my specialists or nurses, (I have 2 onocologists, 2 onc nurses, a Onc surgeon, of course my family doctor and all the angels at the chemo unit, where I receive my treatment). They are very caring, sensitive, fill me in on whats happening and do answer any questions I have. But understanding what they are saying and not knowing what questions to ask had me at a standstill. Since coming on this site, I've learned so much about my treatment, what type of BC I have and what Im dealing with, what my medications are and what they do. I now have a list of questions for my next appointment and Im planning to get copies of my reports(since I didn't realize I could get these). I have also found 2 members so close to my prognosis, its almost like me all over again. Cherlee and Snoopy, Id like to thank you for your replys and letting me know that Im not the only one in my category, It made such a difference in my outlook. Also to all the other members and guests, Id like to say thank you for your support, help, information and just being there to listen to us vent, talk, ask questions or ramble on. I guess we all have the same fears, questions, problems etc.etc. Its just nice to have a place to go to where everyone is the same and we're all going down the same path. Now after all my rambling, I'd just like to say a big THANK YOU to everyone. Keep up the good work. It really makes a difference in peoples lives.

Dawn
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Dawn

Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.


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Old 07-09-2006, 05:40 PM   #2
mamacze
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Location: Madison, Connecticut
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Dittos, Dawn, this is a great site.

Kim from CT
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Old 07-09-2006, 11:00 PM   #3
Chelee
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Dawn, No you aren't the only one in your stage of bc. Like you said...me and you both have almost the exact same DX. And there are many more out there. We all have to stick together and we WILL get through this.

I made it through my chemo...have Rads appt. Tues so we will see what they say and how much fun that will be. I am not looking forward to that because its a EVERY day thing. But I have learned with this...you take one day at a time. This too will pass.

But I am so glad you found this board Dawn...it has a wealth of information here, and any time you need questions answers, just some support, to vent, laugh, cry...heres the place.

Just remember...you can do this...and you will get through it. Might not be alot of fun sometimes...but you will see the light at the end of the tunnel.

Hang in there...sending you warm & healing thoughts.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 07-10-2006, 04:43 AM   #4
sarah
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Yes, it's a great site that I certainly would be at a total loss without so we're lucky to have it and each other to talk to and learn from.
Keep strong.
sarah
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Old 07-10-2006, 06:24 AM   #5
tousled1
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Location: Acworth, GA
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This site would not be possible without Christine & Joe. It is a site where all us HER2s can come and gather information and support. And, it is also the only HER2 support site on the web.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 07-10-2006, 12:51 PM   #6
cathy34
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Yes, thanks for a great site

I feel alot more empowered with knowledge because of this site.
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Only Positive Thoughts ++++++++++++++
-- Cathy34


Thanks to my wonderful husband Steve....I couldn't get through this without you!

Wife and mother to 3 wonderful kids - ages 9, 8 and 3

Dx April 2004
Her2+++,ER/PR--,28lymph nodes removed - 2+, no rads
Radical Mastectomy 5/2004
Recrunstruction 10/2004
Chemo ....
A/C/T
5 FU
Gemzar
Avastin
Xeloda
Navelbine
Herceptin
Doxil
Starting Tykerb Trial
Lung Mets
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