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06-28-2006, 02:56 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Interesting article on our fellow Chinese HER2 sisters...
I know that some of us are "blessed" to get Herceptin, but there are those that still aren't, here is a thought provoking article that once again reminds me how blessed I am. Take care and God bless.
http://www.bloggernews.net/2006/06/c...league-of.html
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-28-2006, 01:50 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 414
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Not just China
I read yesterday that in much of East Europe it is nearly impossible to get herceptin, even for metastatic breast cancer. In the Czech Republic, they reserve it for women under the age of 40. Probably most women globally can't get modern treatments outside of a sponsored trial.
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06-28-2006, 02:51 PM
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#3
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Guest
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Is too many drugs always the best solution ? Herceptin is so new and nobody knows about it's log term effects.
I am in a very depressed mood today. I just feel is it really worth living this life which has the darkness of life threatening disease all the time. There hasn't been a single day since my diagnosis (14 months) that I haven't cried and prayed "God please give me my old days back when I didn't have this fear hovering over me. Even one day would be great , when I can live in freedom". I am not sure if all of us feel the same way but I feel choked and I find it hard to continue to live in this mode. Even soliders are free when they are out from battle field but with cancer , the battle never ends.
I aplogize for writing my thoughts. It's just that when I say these things to people who don't have this disease , they just don't get it. Somtimes they yell, laugh or get angry at me. I just don't know how to explain in to them.
If only I could have one to one conversation with God , I would definitely ask "Where did I go wrong....?"
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06-28-2006, 03:50 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 476
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I just wrote to the news editor that I plan to make a small donation to the courageous Chinese women. Thanks for posting this article.
Ann
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06-28-2006, 03:52 PM
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#5
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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my heart goes out to all the girls who have this disease
And I know everyone must get really bummed out on a very regular basis. yet how many times has it been said that cancer doesn't affect one person but everyone who cares about that person. Think of this as a time to draw people towards you, as they may be hurting just as much as you are. God has nothing to do with this and you didn't do anything wrong, maybe it's just the luck of the draw. Two things I do know: is how many times a day I ask myself they very same questions and two, if I could have traded places with Linda... those who know me on this board can predict the answer.
The moral of the story: you're not hurting alone.
Best wishes,
Al
ps don't forget to register
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Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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06-28-2006, 07:46 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I have found that the best way for me to deal with all of this is live my life to the fullest....none of us can predict the future...no one can predict that they will get breast cancer....the greatest gift to me is when someone says...you don't look like you have stage IV breast cancer....and there are many days I dont feel like I do....I worked with cancer patients in the hospital for many years and attitude is a very powerful treatment in this disease!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-28-2006, 09:51 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
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Rhonda,
You are incredibly motivating; I love reading your posts and threads. Just when I have a smidg of a thought to feel sorry for myself, I stumble on things like this incredible story you have posted about these brave Chinese women, and I am reminded all over again of all the things I have to be thankful for.
And Sheila, you are right, attitude is huge. But as our unregistered guest has pointed out, sometimes the burden can weigh down the greatest desire for positive attitude. Friends like you and Rhonda and all here are a great help in keeping us focused on living.
Love Kim from CT
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