Feedback On Anyone Taking Taxol/carbo/herceptin

[IRENE FROM TAMPA]

I know there are several of you taking the combo of Taxol/Carboplatin/Herceptin but I can't remember how far back the post goes or who is on it.

I would love to get some feedback on how well you are tolerating and how it's working for you/how long you have been on.

I will start my treatments tomorrow with this combo. I will be on three weeks on with the three, and the fourth week just the Herceptin. I just got off of Abraxane and have not been on Herceptin since last July because my onc would not ok the two together.

I am anxious to see how these will react on my tumors.

Any info would be appreciated.

Thank you all and take care.

[Lee]

And it worked very well on my liver & bone mets. I'm NED right now! I had 3 lesions on my liver and a spot on my pelvis, and they are all completely gone.

I found it very tolerable - I lost my hair and was more tired than usual, but the nausea and other symptoms were pretty nonexistent. I had some issues with diarrhea but Immodium took care of that. I usually took an anti-nausea med 2 days after treatment and that was about it.

Hope you have good luck with it also!

[Lolly]

Irene, just wanted to say good luck with your first tx tomorrow, I am pleased you're getting what seems to be a potent mix; kick some you-know-what!!!

<3 Lolly

[lisahammo]

Hi Irene

I have been having this combo for 8 weeks now. I have had no issues with side effects; very, very slight nausea (no need for meds), a few hot flushes from the Taxol, blood noses, a bit tired & that's about it really.

I did have a problem with my haemoglobin & neutrophils for a couple of weeks, and had to stop treatment, but we are back on track now. I also found that my liver levels weren't dropping as quickly as I would have liked. I also have 3 spots on my liver. However, my onc said the Taxol could be causing the bad readings, and we would give it another 2 sessions. Anyway, all of a sudden it has kicked in, and they have dropped dramatically. I am so happy this week.

So, all in all, I am happy with the treatment so far.

Good luck with your treatment. Keep us informed.

Love Lisa

[storyteller]

I took that same "cocktail" beginning March 2005 and ending Aug 2005. Results were great. Did chemo first and when I had my surgery, there was less than 1 cm of tumor left which was removed (and surgeon got clean margins). I began with a whopper of a tumor!

Stayed on Herceptin Sept-Mar to complete a full year.

I am thrilled the rest of you had few side effects, but I had a totally different reaction. Was very sick and had no energy during treatment. But with such great results, it was definitely worth it.

I sit here today feeling good and will celebrate my 58th birthday next week. (Honestly didn't know if I'd make it when I got my diagnosis last year). NED!

[IRENE FROM TAMPA]

Had my first cycle yesterday (was a long day) I got used to in and out in 30 minutes..

So far so good with side effects. The only I really felt yesterday was being drugged from the Benadryl. Had a good nights sleep though.

Of course this was my first and it's being broken down into 3 weeks so we will see. Main thing is that it works for a while anyway.