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02-01-2006, 05:01 PM
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#1
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Brain PET tomorrow
Well gang, I am getting a little closer to finding out what, if anything, can be done for my Question Mark that showed up in my last brain MRI.
To recap, there is a little enlargement to the area of Gamma Knife one year ago in my cerebellum. This is after nine months of shrinkage.
So it was decided to try a PET scan of my brain to see if they can tell any more about what is going on before doing an actual open surgery.
If I am lucky, I will have results Friday. My docs are all in town this week!
One thing I did not know - no need for Atavan with the brain PET. Means I can drive myself and no one has to wait with me.
It will be a comfort to know that I have a lot of good energy and prayers coming from the wonderful people here.
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02-01-2006, 05:04 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 285
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Steph,
Best of luck, sis. On my last PET scans, I asked for copies of the films on the spot and got them. If you think you could tell what you're looking at, you might give it a try. Of course, there were several spots on mine that were NOT mets, so it can make you a tad bit nervous.
Love and light,
Lisa
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02-01-2006, 05:13 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Lots and lots of positive energy coming your way from Alaska, Steph, as you define what is going on and work your way forward with your doctors. Keep your eyes on the prize.
HUGS,
AlaskaAngel
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02-01-2006, 05:20 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Tons of good karma from the opposite coast is coming your way. I'll be thinking of you.
 Becky |
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02-01-2006, 05:33 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Huntington, N.Y.
Posts: 162
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You will be in my thoughts and prayers tomorrow.
All the best,
Maryanne
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02-01-2006, 06:08 PM
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#6
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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Steph,
I will be thinking of you tomorrow. And, hoping for the best.
Good luck,
Al and Linda
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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02-02-2006, 05:19 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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sending you one of my angels
Steph
I am sending you one of my angels to watch over you - my prayers and best thoughts are with you today.
Good luck my friend
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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02-02-2006, 08:29 AM
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#8
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Guest
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Steph,
Hope this test will do the 'trick' for you and show minimal rad damage rather than any activity of mets...
Another test for you to tuck away in your experience folder!
xoxoxoxoxoxoxthinking of you.
hugs,
pattyz
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02-02-2006, 08:48 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Winchester, KY
Posts: 35
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Good luck Steph!!! I am thinking of you.
xoxo,
Brittany
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02-02-2006, 08:59 AM
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#10
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Oh Steph,
You know I feel like I'm sitting in the seat right next to you on this scary roller-coaster, and it's too late to get off now. We just have to hang on tight and give it all we've got. I know this is what you always do anyway! I'm thinking of you and praying my hardest. Love Kim
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02-02-2006, 10:23 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Thinking of you too Steph!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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02-02-2006, 06:35 PM
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#12
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks so much!
To all of you who held me in their thoughts today.
What I actually had was a scan in the new PET/CT machine.
They scanned my neck and head.
That was the easiest thing I have done - just more like a long CT scan, without having to drink something beforehand. Both screenings are done in ONE machine and the PET part was perfectly quiet - not even a light blinking to tell me something was happening.
And the space inside is a little larger than the old PET scanner so I did not even feel the sides with my elbows. So if anyone is problematic with tight spaces this will be easier for you to tolerate.
Hope to have some results by the end of tomorrow - the radiologist I know was not attending today, so could not get a "sneek peek."
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