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julie,
my mom also has symptons when she tries to come off the decadron. the dr says that he thinks that the wbr killed the tumors but because the tumors are still there, the brain rebels against them and causes the swelling, which causes the symtons. he also tells her that the symtons can fluctutate. she is taking 4mg of decadron daily now, and seems to do pretty well with that. has weight gain from the steroid, and sometimes dosen't sleep well. but it controls her symtons. the dr says that she may need to take the dec indefinitely. at one point when she tried to wean off the dec, she started having nausea and vision prob. she called the dr and he said to go back on the daily dec, and when she did, the symtons faded. i know i ramble alot, but i hope this makes sense.
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Hybrid Mode
