Just found out I am HER2+ and need help

Hi Ally,
I am er+, her2+++ with mets to bones & skin. I was on tamoxifen briefly after initial surgery, chemo & rads in 2001, but switched to femara after developing a blood clot. Mets to bones occurred in Dec, 2002, and I tried 3 different aromase inhibitors (or hormonal drugs) with no success. Disease progressed and spread to skin. I began herceptin with navelbine July, 2003, which was very effective (tumor markers dropped like a rock!) until Jan, 2004, and am now on gemzar + herceptin wkly, + zomeda given monthly to strengthen the bones, a new premed called Aloxi, and aranesp given via IV every other wk for low red blood count. My inital tumor was a fairly uncommon type called lobular which is quite aggressive. I agree that you might benefit from a 2nd opinion, and a 3rd if necessary!! The stakes are high and it's up to you to seek out the best medical treatment for yourself. Hope this helps and I wish you the best of luck!!