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05-02-2006, 02:22 AM
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#1
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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roll call for BC not found by reg mamo's till 2cm or lgr
I know I am still angry that I did everything I could - yrly mamo's and didn't discover my cancer untill it was 5cm in size. I am just wondering how many others suffered this shock?
DCIS, inv Ductal and inv Lobular with 7 nodes involved.
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05-02-2006, 06:59 AM
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#2
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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BC not found by mammo until 2cm or more
I am interested in this topic, although it doesn't apply to me. My boss was diagnosed with B/C and it was 2 cm with no lymph nodes. An acquaintance was diagnosed with B/C and it was >2cm with 3 lymph nodes pos. Both had clear mammograms the year before. Both were Her2 pos. I was diagnosed with .55 cm tumor with no lymph nodes. Grade 2 tumor. Her 2++. I was five months late for my mammogram and rushed to get it when my boss was diagnosed. I am wondering if it was a matter of timing. If I had gotten the mammo five months earlier, the tumor might not have shown up and it would have had a whole year (or more) to grow.
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05-02-2006, 09:30 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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My tumor was 15 cm (!) and NOT detected by mammogram, ultrasound or by my breast surgeon. I went to the doctor due to a bloody nipple discharge. I had a mammo, ultrasound, etc., but everything was inconclusive--Apparently, my breasts were very dense (36 yrs. old at the time)...So I had a nipple biopsy which showed atypical cells, decided on a mastectomy, and the pathology report surprised us all with the huge invasive tumor. Had lymph node involvement, too. Fortunately, this was in July 2001 and after chemo, rads and HERCEPTIN I am doing fine--celebrating 5 year survival this summer. Oh, getting back to the tumor--it wasn't a big mass, more like a slender snake was the way they described it...
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05-02-2006, 10:23 AM
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#4
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Member
Join Date: Apr 2006
Location: Everett, WA
Posts: 21
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Kimberly, I had a similar experience. My regular doctor had done a breast exam mid March of last year and then I discovered the lump in June. I was due for my mammo in April and put it off a couple of months (I am a teacher). When I went back to my regular doc, she about fell over! She measured the lump and it was (according to her) 8 cm! My onc said it was more like 5 cm and then I had chemo prior to a lumpectomy. I think HER2 can do that....I too had had yearly mammograms with nothing EVER detected! But my tumor also had "a complete clinical response" to the chemo, meaning it disappeared....with clear margins and no evidence of cancer left (pathology report). I think that this is the nature of HER2 and why it is so scary!
SandyR.
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05-02-2006, 10:28 AM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 52
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Yep, me too. Yearly mammos. One day I was toweling off, looked in the mirror and noticed something poking out above my nipple. Radiologist and surgeon both thought it was smaller, but it ended up being 5cm.
That's why I have mammos AND an MRI now.
Last edited by dberg; 05-02-2006 at 10:35 AM..
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05-02-2006, 11:18 AM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 823
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I have had yearly Mammo's ever since I was 37. Mine didn't show up on Mammo or ultrasound. What they said was it was fluid filled cyst, this was last year when I was 49.
I also didn't really feel anything, but went with my gut and had a biopsey and SHOCK I had a 5cm tumor. Went back for the mastectomy as the surgeon said there was another one, and this measured 6cm, I had 5 postive nodes of 16 removed.
Also had a simple mastectomy on my left side this past January as my Mammo showed increased micro-calcifications as I wasn't going thru this again.
Vicki
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05-02-2006, 11:49 AM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 38
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Not found on mamo.
The tumor was not found on the mamo and it was done after the doctor felt my 3.8 cm tumor at my annual exam and he sent me for followup.
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05-03-2006, 12:29 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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I was about to start my yearly mammos as my mother died of BC. On my first mammo it only showed lymph nodes which were supposedly healthy. So after a while i got the "healthy lymph node" out and it was cancerous but no sign of tumor on mammo or ultrasound. My tumor turned out to be 23mm.
Just had my yearly mammo on remaining breast but am very sceptical of the 'all clear' results !
Christine
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05-03-2006, 05:59 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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I had a palpable mass not visible on mammo but visible on Ultra Sound. Had a lumpectomy w/cleear margins. After lumpectomy I had a breast MRI and two more tumors were found adjacent to where I had the lumpectomy. I also have dense breasts. I think anyone that has dense breasts should receive a breast MRI in conjunction w/mamo and US.
I also think that many "recurrances" are really tumors that had always been there -just not caught.
maria
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05-03-2006, 06:54 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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4.5cm
According to the report my tumor was "at least" 4.5cm. Didn't show up on mammo or ultrasound. I discovered a hard lump while showering. I had noticed a thickening in the breast about 9 months prior, but was dismissed at my annual physical.
I had very dense breasts. My onc explained that with dense breasts and mammograms, it is like using a white crayon to mark and "x" on a white wall. The tumor won't show up.
Barbara
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05-04-2006, 04:10 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: Sydney Australia
Posts: 105
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I also had regular mammos and I was "lucky' that the tumour turned out to be Inflammatory BC, or else it may not have been discovered. 2003 I had nipple change of colour and itching of breast. Went straight to top mammo centre. They took mammo, said all clear, but couldn't work out what itchy area was. Did an U/S which showed a 7cm tumour with poor differentiation. 12 out of 19 nodes involved. Had all the chemo. Recurrence after 10 months to skin. C/O cough-CT scan done day before scheduled for 1st Herceptin. Spread to lymph nodes,pleural effusion. Next 3 months CT scan, NED. Hallelujiah! Herceptin.
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05-05-2006, 10:59 AM
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#12
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Senior Member
Join Date: Sep 2005
Posts: 29
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Mammo did not pick up my 4.5 cm tumour nor the other 1.0 cm beside it. Now I have mammos, ultarsounds AND MRIs. I have the mammo and ultrasound together the MRI 6 months later.
I have a two friends who also are in similar circumstances.
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05-22-2006, 11:09 AM
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#13
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Thanks everyone for the posts. I know I am not alone in the shocks and dissapointments of BC.... I just was angry that the very same mamo screen was looked at by several different folks (surgeons and radiologists) and only one saw the huge tumor. There must be better training that that one person had! It can't be Luck for crying out loud!
Thanks again, Kim
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