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04-30-2006, 12:53 AM
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#1
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
How long does your ONC. SAY YOU WILL HAVE TO CONTINUE HERCEPTIN AS AN ADJUVANT AFTER BASIC CHEMO.MEDS??? (1st time HER2's PEOPLE, WITH NO MET. known???)
How often has your blood test included looking for tumor markers such as CA-125, CA-15-3, and 27-79, and/or CEA?
Last edited by kat in the delta; 05-01-2006 at 07:53 AM..
Reason: left out info.
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05-01-2006, 02:27 PM
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#2
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I'm on Hercepton indefinately also ( I take that to mean a long long time), since I am stage IV. I had 2 small lung mets...sherryg683
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05-01-2006, 03:30 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Kat,
I will soon finish my one year of herceptin and will be talking with my onc about second year. A lot may depend on the two year results of the HERA trial. Currently no tumor markers are done, as my onc feels that they are somewhat unreliable and looks more at symptpoms, etc to determine further scans, tests, ect. He does blood work for bisphonsphonates(sp?), liver enzymes and I have had a cat scan that came back all clear.
Sassy
________
WASHINGTON DISPENSARIES
Last edited by sassy; 08-22-2011 at 08:46 AM..
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05-06-2006, 02:16 PM
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#4
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
Sassy,
What is the HERA trial?? I may be doing it and not even know.---------------kat
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05-06-2006, 02:25 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Kat;
MUGA score is the Gated Cardiac Scan....why the name....I really don't know. I get two shots when I do the test....one to prepare my red blood cells to accept the radioactive dye which is injected 30 minutes later. This dye attaches itself to the red blood cells so that they can visualise the blood in my heart. After the second shot you lie down on a table and electrodes are attached to your chest. A gamma cameral is placed close to your chest and images are produced of the heart to determine how well it is functioning. Hope this helps.
Cathy
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05-06-2006, 04:51 PM
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#6
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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The HERA trial was a trial for heceptin for early stage patients.
If you type "Hera trail Results" into the search engine avove right - click on search and type in the term you are looking for just in cae you are unfamiliar with it, you will find a post by Joe towards the bottom of the page with a copy of the trial.
If it is not there it has been posted two or three times.
Re muga "multiple gated acquisition scan" (I did not know what it stood for either) a search on google came up with this site that looks helpful
http://heartdisease.about.com/cs/oth...s/l/blmuga.htm
I hope this helps
RB
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05-06-2006, 09:51 PM
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#7
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
Cathya,
What was your score on the MUGA.??? Do you know the range of numbers that apply to it?? I have had a rested gaited heart scan in the Nuclear Medical part of our hospital. I was injected with a dye, then lay down on a table where a machine came almost to my chest and scanned it. Do you think that was the same test YOU had?? I know the tech. who performed it, so I'll check with him this week. My Onc. doesn't tell me anything when I ask him a ?.
I thought I read somewhere(?) that Herceptin only helped a low percentage of HER2, anyway. It may have been somewhere with that Bayer Serum(?) study. The drug companies are coming up with more tests to see if the drug they have manufactured is helping people. I think this is what Should be done, anyway. I think I read where one part of the co. makes the new drug, and the other part tests to see if it is working and HOW Well it is working----Maybe, Joe can get me straight. I am interested in the drugs (sp?) Xeloda, car----, or the one(?) that is used instead of herceptin. and the new drug for Brain cancer.
I just got an MRI, and a was OK. waiting for my left breast mamogram, and demanded some tumor marker tests when I get my blood drawn in 2 wks. My cancer hasnt metastasized as far as I know... Who knows all the new trial drugs and new drugs for HER2 and Breast Cancer??
Also my 48 yr old cousin Robert had bladder cancer that has met. to his lungs, hips, and vertebrae. He starts his 1st chemo Mon.=RSVP out there-Kat in the Delta
Last edited by kat in the delta; 05-06-2006 at 09:57 PM..
Reason: misspelling
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05-01-2006, 06:47 PM
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#8
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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HI KAT, I DID 4 A/C & 12 TAXOTERE, 35 RADS AND MY DOCTOR HAS ME STARTING HERCEPTIN FOR 1 YEAR WKLY. HE HASN'T TALKED TO ME ABOUT TUMOR MARKERS. I HAD A 2.1 CM TUMOR IN RIGHT BREAST WITH 8 POSITIVE LYMPH NODES OUT OF 10. HOPEFULLY I WILL HAVE NO COMPLICATIONS WITH HERCEPTIN.
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05-02-2006, 02:22 AM
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#9
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Kat,
It is not a topic I have read much about.
Thoughts that occur to me;
Check out the Sweedish trial where it was shown ten weeks was as effective.
I have a vague recollection of reading the the short course has been approved in South Africa ( you need to check that)
The links to the HERA trial are on this site.
NCBI is a good resource for trials use the search engine.
I suppose you may want to try and find out what you can about resistance - is it better to keep Herceptin in the armory - does herceptin resistance diminish if you come off it for a while - should you save it for later in case if you a clear now.
The problem as I am sure you are aware is that this group of patients is in effect the wider trial.
From your bold type I would guess you have some decisions to make and it understandably is worrying you.
Sorry I cannot be of more help, maybe Lani who is hugely knowledgeable and resourceful can help.
RB
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05-02-2006, 02:31 AM
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#10
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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I have been told one year only w/o mets... stage 3a 7nodes. I have yet to have a tumor marker or any follow up scans. Completed 4xof dose dense AC. 1xof taxol, 30x rads. Lmast. w/ax. nodes removed. Rbreast proph. mast. In line for ooph, hyst.....
I am struggling with having to demand scans and tumor markers. It seems like you have to fight for treatment all the time.
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04-30-2006, 10:11 AM
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#11
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I take no pre-meds now, just the Herceptin once every three weeks and it takes 90 minutes.
Karen
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05-01-2006, 07:45 AM
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#12
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
Are you taking the adjuvant "Herceptin alone for 1 yr., or 2 yrs."?? Everyone/ or anyone can give me some input of what their Oncs. are doing, after finishing the basic treatments.
Also, how often are you tested by bloodwork which includes the tumor markers : CA-125, CA-15-3 abd 27-29, and CEA ???
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05-01-2006, 09:47 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Kat;
I was told I would be on herceptin indefinitely. Unfortunately I am off temporarily due to a low muga score but expect to go back on asap. I am stage 3c.
Cathy
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05-01-2006, 11:52 AM
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#14
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Herceptin
Hi Kat. Getting close to my year on Herceptin and just had 2 oncology opinions that recommend ONLY the one year for early stagers.
Mary
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05-06-2006, 02:14 PM
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#15
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Senior Member
Join Date: Apr 2006
Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt.
Posts: 224
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kat in the delta
CathyA
What does MUGA stand for?? What is the HERA trial, anyway?? does anyone know?? kat in the delta kat
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