Dear Cathya,
Either fundraise or be a political activist. The message that needs to get out is; what happens to or what do we do with, the people who have run out of options? I think the health care system needs to give the doctors discretionary power to prescibe off-label and still operate within the constraints of the system. After all, how many times will a doctor prescribe a treatment that isn't working?
side-bar: I wonder what our american friends think of this argument; they must think we live on another planet. (no disrespect intended)
Al
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Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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