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03-16-2007, 07:45 PM
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#1
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Rough Couple Of Months
JUST NEED TO VENT. MY FATHER DIED THE END OF JANUARY AFTER A MONTH OF HOSPICE CARE, I WAS PREPARED BUT IT WAS STILL DIFFICULT. THEN I STARTED THINKING SOMETHING WAS WRONG WITH ME, I FELT BLOATED AND COULD SIMPLY NOT LOSE ANY WEIGHT. A MONTH BEFORE I TOLD MY DOCTOR I HAD BEEN COUGHING A-LOT AND GAGING. HE PRESCRIBED SOMETHING AND IT HELPED BUT NEVER WENT AWAY. I THOUGHT MAYBE I'M JUST NOT WELL FROM ALL THE STRESS OF MY FATHER PASSING. I WENT IN WITHOUT AN APPOINTMENT AND TOLD HIM I FEEL STUFFED & BLOATED. BY THIS TIME MY STOMACH WAS DISTENDED AND I WAS REALLY STARTING TO PANIC. THEY SENT ME FOR AN ULTRASOUND & CT AND DON'T YOU JUST KNOW I HAD AN OVARIAN TUMOR. I HAD SURGERY A WEEK AGO AND THEY DID A HYSTERECTOMY AND OPENED MY ABDOMEN UP, I HAD 2 TUMORS, ONE ON EACH OVARY. THEY HAD TO PUT A CHEST TUBE IN ME BECAUSE I HAD FLUID IN MY CHEST AS WELL AS THE ABDOMEN. I HAD TUBES EVERYWHERE AND SPENT 5 DAYS IN THE HOSPITAL. I WILL SEE MY ONCOLOGISTS IN 2 WEEKS. NOT SURE WHATS NEXT. I THINK I'M KINDA IN SHOCK. I FEEL LIKE I'M WATCHING IT HAPPENED TO SOMEONE ELSE.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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03-16-2007, 07:50 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Sheila, I'm sorry you are having to go thru this and will keep you in my thoughts and prayers. Please keep us posted on how things are going--hope things get better for you soon.
________
SexxAffair cam
Last edited by sassy; 08-22-2011 at 09:11 AM..
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03-16-2007, 08:04 PM
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#3
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
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Sheila,
I imagine being told about the new tumors would make you feel much like you did when you were diagnosed with breast cancer. It must be frustrating and absolutely draining to contemplate another round of treatments, not to mention all the old fears creeping back in. Sometimes, I think the mind will protect you from some of those feelings by giving you this "on the outside looking in" perspective until you can gather your strength to hit it head-on and I know that strength will come to you. Just remember, you made it through the first time and no matter how bad it may have been, it has made you a stronger person. I will be praying for you tonight and giving you a big healthy hug from my heart.
Stephanie
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03-16-2007, 08:22 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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So sorry Sheila. What was your original ER/PR? Do post the new pathology and suggested treatment. I'm hoping these tumors are easily treatable and someone who knows something about this particular type can give you advice. I would guess there is also an ovarian cancer support group.
Not fair, but praying you can kick this as well. Hang in there. We're here for you. Bev
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03-16-2007, 08:18 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Dear Sheila,
Oh my dear, what a lot to deal with. No wonder you feel like you're in shock! Any one of these things would be enough to push anyone over the edge. I can't offer anything but cyberhugs and prayers that things will settle down for you soon. Glad you came here to vent.
Much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-16-2007, 08:23 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sheila,
First of all I'm sorry to hear that your father passed away. Secondly, it's a good thing you did go to the doctor when you did. It's amazing what are bodies will do. I'm praying that when you get the results of the tumors everything will be benign so that you will not have to go through anymore treatments. Sending you a big hug!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-16-2007, 09:31 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Sheila
That is so much to do through.I am sorry it has been such a hard time for you. Keep letting us know how you feel and drawing strength from other lovely women on this forum.
love
linda
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03-16-2007, 09:46 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Shiela,
Sorry to hear about your Father. No matter how ill our parents become we are
never prepared to let them go. You have been through a lot.
I am thinking positive thoughts for you and sending you a big
hug. Take care and please keep us posted on your progress.
Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-17-2007, 05:11 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Sheila
So sorry about all you are going through topped by the loss of your Father....we are never ready to say goodbye to those that gave us life, a home and made us what we are today. I am praying your reports will be clean and this hurdle behind you in not time, with renewed strength and many more years to come.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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