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09-07-2004, 06:25 AM
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#1
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Guest
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LuAnn, thanks for sharing your experience. Sandy and Susie I am sorry that it didn't work out for you to go there. I am checking out to see what my insurance feels about it. It sounds like such a wonderful place. I'm still praying about it for me. If I am to go to the center in Tulsa the doors will continue to open. I pray for good treatment and care for you where ever you have to go to get it. God Bless each of you! Deb F
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09-17-2006, 10:27 AM
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#2
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Member
Join Date: Sep 2006
Location: Oklahoma
Posts: 9
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Newbie going to CTCA
Hi, I am new to this forum and happy to have found it. I am 46, married, and live in Tulsa but Blue Cross is not affliated with CTCA in Tulsa so I am flying out to Illinois with my husband on Tuesday for a 2nd opinion. Was diagnosed with Invasive Lobular Carcinoma on 09/08/06, with tumor 18cm in right and 2cm in left and surgeon did not perform biopsy on left like he was supposed to. Planned on doing a mastectomy all along so I am relieved to hear positive things about CTCA. They have been wonderful and are paying for mine and my husbands airfare. My housing is free along with free meals. My husband pays for housing and very low fees for meals. Can't wait to get there and get a COMPLETE and ACCURATE diagnosis. I am completely confident I made the right decision on postponing my mastectomy until I meet with CTCA. Good luck to everyone in their fight. I'm scared but both myself and my husband have a very positive attitude.
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09-17-2006, 02:14 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Sher...
Or anyone else who goes to CTCA in Zion...I live about 2 hours from there, and worked in Zion at the ComEd Nuclear Plant for over a year until it closed....it is a great area and I have heard great things about them, although I have never gone there. If you have a break, take a walk along the State Beach Park on Lake Michigan...it is so refreshing! Good Luck!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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09-18-2006, 06:23 AM
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#4
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Member
Join Date: Sep 2006
Location: Oklahoma
Posts: 9
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I agree
Sheila,
I'm hoping to have many opportunities to walk the area, once again, in Zion. I was born and raised in Chicago and would love to be able to take my husband around the area and show him were I grew up. I left Chicago when I was 14 but still remember the area quite well, although I'm sure it's changed since I last visited about 1o years ago. What's your weather like there, by the way, so I know what to take clothes wise. Another good thing, my sister is only 4 1/2 hours away from CTCA so if I stay there for treatment she's just a phone call away to be there.
__________________
Sher
So Far:
Lump found 08/06 right breast.
DX 09/08 Invasive Lobular Carcinoma RB, Stage IV.
9/25 First Surgery - Complete Mascetomy w/expander and port placed.
ER/PR/HER2-, 15/20+
Major tissue damage.
METS to skin, liver, brain, sternum, lymph nodes.
10/3 Second Surgery - fat donated from lower ab and skin grafts from pubic area to chest
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09-18-2006, 08:00 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Sher
It has been warm, in the 80's, but this week the high is supposed to only get to 60 with lows at night in the 40's....typical iLLINOIS WEATHER, GO FROM AIRCONDITIOING TO THE FURNACE! Yes Chicago has changed....lots and lots of traffic.....you are only a short trip from the outlet mall in Gurnee (Waukegan) and to Racine Wisconsin which is about 30 miles north...another pretty area.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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