Her2++ No Mets

02-13-2006, 12:24 PM

Has anyone be dx, with her2 and not got mets?

Just wondering?

Randi

CLTann · 02-13-2006, 02:09 PM

I am sure there are hundreds of stage 1 HER2 positive women who have no mets. The non recurrence rate is quite high for these women, regardless of the HER2 status. I am one of them.

Ann

RhondaH · 02-13-2006, 02:35 PM

I was dx w/ Stage 1, no nodes, ER/PR-, Her2+ on 2/1/05. Had a partial mastectomy on 2/7/05, finished 6 rounds of dose dense TEC 5/18/05 and 33 rads 8/1/05. Began 1 yr of every 3 weeks Herceptin 8/18/05 and will have my last one 8/10/06. I don't have mets.

Rhonda

lia · 02-13-2006, 03:36 PM

I 'm sure there are many stage 3 her2 +++ women who haven't developed secondaries . I was diagnosed 28 / 1 / 05 and although I know it's very early days, so far so good. I 'm lucky to be getting herceptin( in the uk) and combined with zoladex and arimidex and various supplements I feel fine, all things considered ! This site, along with the bcc site in the uk, has been my virtual rock in the 10 months since I managed to find out my her 2 status. Without them I doubt whether I would have managed to get herceptin as close to my chemo finishing as I did,or whether I would have even found out about her2 so early on. Thankyou to everyone on here ,and to anyone from the bcc site who is reading this !!

Maggie · 02-13-2006, 07:05 PM

Lia, would you share the BBC site with us! We go to the UK, often and I get BBC news via email every day. I would be interested in reading it. I see they are starting to give herceptin over there now, too. The women are demanding it and I don't blame them. Where in the UK are you?

Maggie

Montana · 02-13-2006, 10:19 PM

Randi, I am Stage 1 no nodes, Her2+++ diagnosed 10/04. I'm taking Arimidex, and am NED according to recent scan.

Michelle · 02-13-2006, 03:36 PM

I was diagnosed stage 1c, er+/pr+ on 4/26/05. I do not have mets at this time. I wonder the same thing being her2+++, are we destined to end up with mets? I believe herceptin is giving many of us much longer times between reoccurance.
Michelle

02-13-2006, 04:39 PM

Hi - I was diagnosed 4/2002, age 47 (lumpectomy, ACx4, Taxolx4), 37 rads. Grade 3, er/pr-ve, her2+++, 1+ve node. I chose not to take herceptin; participated in a vaccine trial @ UW in 2004; so far, so good! I, too, think there are many her+ with no mets, many years out.

Marianne

chartermom02 · 02-13-2006, 05:01 PM

I was diagnosed at age 41 with Stage 1 IDC in October 2000. 2 cm ER+/PR+. Her2+++. Lumpectomy, A/C x4, and 35 rads. Tamoxifen for 3 years 10 months; now on Arimidex since November 2004 after my hysterectomy/oophorectomy. No Taxol back then, that was only for patients with positive nodes; and no Herceptin back then for Stage 1 - I say "back then" like it was 20 years ago but protocols change so rapidly. So far NED!!

Gloria

Maggie · 02-13-2006, 06:41 PM

Randi, I'm HER2 +++ ER/PR negative, stage 1, no nodes, no mets, on herceptin every 3 weeks.

Maggie

tousled1 · 02-26-2006, 04:36 PM

I was diagnosed Oct 2005 with Stage III ER/PR negative, HER2 positive, axillary lymph node involvement - no mets. I opted for chemo before surgery due to large size and high grade tumor and also because of the Holidays. I just finished 4 rounds of adriamycin/cytoxan (A/C). Experienced severe problems with low blood counts and now am scheduled to start 4 rounds of Taxotere after which I will have surgery. My tumor has shrunk, not significantly but somewhat. My oncologist has already told me that after surgery I will have radiation and then a year of herceptin. I am a new member and don't post much but do check all the postings. There is a wealth of information on this site.