|
|
11-10-2010, 06:36 PM
|
#1
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
From Leslie: Hi Everyone, I have brain mets and need your support
This thread is for Leslie.
She is in the hospital being treated for brainmets and having a hard time starting a thread.
Leslie we are here to support you through this,
Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
11-10-2010, 07:07 PM
|
#2
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Alice,
Which Leslie? (fauxgypsy) Or a different one? Regardless I am so sorry to hear this news. There are some wonderful ladies that have battled brain mets and are doing well. I'm sure once we get some more information they will chime in and help in anyway possible. I will be keeping Leslie in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
11-11-2010, 02:51 AM
|
#3
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
I'm guessing it is Leslie 304:
Leslie
__________________
2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 - started radiation
11-11-09 - Tumor markers normal! Radiation continues.......
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin...flying without a parachute!
11/8 - Brain METS! CRAP! WBRT, chemo again. Then what?
Leslie,
There are other options besides/after WBRT. I'm seeing a radiation oncologist on the 23rd to discuss radiosurgery (the hospital just purchased a Novalis Tx in June) One of the two enlarged tumors (Central Neurocytoma - unrelated to BC)has the potential to block the cerebral spinal fluid to the third ventricle.
Check out 'stereotactic radiosurgery - LINAC' and ask your doctor if it's an option for you. Seems Christine (the Founder of this website) has had whole brain radiation. And she's been doing well for the past 10 years.
Take it easy - know that we are rooting for you. Sending prayers from Central Texas.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 11-11-2010 at 02:58 AM..
|
|
|
11-11-2010, 02:58 AM
|
#4
|
Senior Member
Join Date: Feb 2009
Posts: 1,526
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Sending positive thoughts and prayers. I am assuming it's Leslie 304. Please let us know .
Ellie
|
|
|
11-11-2010, 07:08 AM
|
#5
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Sending ((((hugs)))) and lots of positive vibes Leslie!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
11-11-2010, 08:50 AM
|
#6
|
Senior Member
Join Date: Jul 2006
Posts: 463
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
So sorry to hear this, Leslie. Brainmets bc is a good online resource: http://www.brainmetsbc.org/en/conten...rain-mets-club
Debbie Laxague
|
|
|
11-11-2010, 12:03 PM
|
#7
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Dear Alice,
I have no advice for brain met txs. I am sad to read that Leslie is being challenged with this. Please let her know that we are praying for her to receive the best tx to kick this cancer's butt.
Hugs and Prayers,
Lexi
|
|
|
11-11-2010, 05:42 PM
|
#8
|
Senior Member
Join Date: Oct 2005
Posts: 823
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Oh No I'm so very, very sorry to hear about Leslie. Prayers will be going out for her.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
|
|
|
11-11-2010, 06:00 PM
|
#9
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Hi, Yes Leslie 304, She is in a hospital in NY and being treated for 4 brain mets. I am not clear but believe her current treatment is whole brain radiation.
Her treatment is for 25 minutes a day. Her family is about 2 hours away.
She wanted to talk to you all and couldn't figure out how to start a thread.
I think she will be responding soon.
She sounded very strong and is thinking about going to Fox Chase to see Dr. C. If you remember, she went to MDAnderson to see him early on. and was treated in NY.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
11-11-2010, 06:55 PM
|
#10
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
My thoughts and prayers go out to Leslie. Stay strong!
__________________
For Nicola
|
|
|
11-12-2010, 02:56 AM
|
#11
|
Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Sending postive thoughts and healing energy to you Leslie. I have not walked in your shoes and have no personal insight on brain mets but know that others here will chip in on their experiences.
Take care .... remember to breathe....
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
|
|
|
11-12-2010, 10:41 AM
|
#12
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Stay strong sister - you can do this Leslie. Many of us are living well with a brain mets diagnosis. And you can too. I hope the WBR blasts them all to oblivion and you can go about the business of living your life after its over. Love and prayers coming your way, doll.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
11-12-2010, 11:27 AM
|
#13
|
Senior Member
Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Thanks Courtney, I need to hear people have beat this! The rad onc and med onc are using words like worrisome, and so sorry. NOT what I want to hear! I need to focus on your story ... having gotten through it!!! What meds are you presently on?
__________________
2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
|
|
|
11-12-2010, 03:04 PM
|
#14
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
You can and will beat this Leslie - keep the faith girl. I've now had a total of 18 brain mets and I'm alive and kickin - and plan on staying that way for a long LONG time. To answer your question, I am currently on Herceptin, Tykerb, Zometa and the vaccine trial at the U of Washington. We decided not to add a chemo at this time because this combo of treatments was shrinking the brain mets by itself before I had my most recent round of Gamma Knife. We will revisit this decision in January after I finish the trial to see if chemo is warranted. I'm hoping I won't need it but we've talked about Temodar.
Did you already start WBR? Any chance you could do SRS instead?
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
11-12-2010, 03:06 PM
|
#15
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Oh yeah, and I take mega doses of Boswellia - an herbal supplement. To read more about the roll of Boswellia in treating brain mets, read:
http://bcwatchdigest-brain.evidencewatch.com/
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
11-12-2010, 08:21 PM
|
#16
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Pm from Leslie, she is hanging in there, Her mind is a little fussy.
Stay strong friend, Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
11-12-2010, 09:10 PM
|
#17
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
I am sending positive vibes and good wishes to you Leslie. Take good care of yourself and hang in there.
|
|
|
11-14-2010, 05:01 PM
|
#18
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
An update from Leslie,
Hi Alice, You are the best! Thanks so much for your help with thread and encouragement. I am hanging on to the fact that you are doing so well. I am still processing this news and don't have definitive answers from onc until next week about what to expect going forward. I have had 7 WBRT so far and need three more, then chemo will start again and probably Herceptin. I'm trying not to second guess myself but I wonder if I should have never stopped the Herceptin. It was visibly effective on the primary tumor and perhaps that's why onc didn't think it was warranted but maybe I should never have been drug free!! It sure was nice to feel well fro a while though. No fatigue and no foggy thought processes. Hopefull after Wedesday I will have some answers and a treatment plan and an idea what my future holds. Meanwhile I am so grateful to know I have my friends on this forum chiming in with any advice or suggestions that might help guide my future decisions. I am all ears ladies and gents! Thanks, Leslie
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
11-14-2010, 05:25 PM
|
#19
|
Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Leslie, I hope everything improves for you.
Leslie (fauxgypsy)
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
|
|
|
11-15-2010, 01:34 AM
|
#20
|
Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
|
Re: From Leslie: Hi Everyone, I have brain mets and need your support
Leslie (via Alice)- thanks for the update! Hang in there sweetie....
And as for the photos on FB - I will post more new ones this week for your escape trip in your mind here to Italy!
Nostra casa e tua casa! (OUR HOUSE IS YOUR HOUSE!) Anytime you want to come girl --- you let me know!
xoxo Baci - Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 08:39 AM.
|