Michelle as far as I know there is nothing for these triple negatives. I lost a friend last year who was IBC, triple negative and once she completed radiation she passed away 5 months later. After rads she was on nothing. She told me she was doing great 1 month after rads and 2 months later she tells me her cancer had spread to bone and all organs. They did put her on chemo for pain but she knew it would not help the cancer. She was told there was no maintenance for her. I think this is being looked at and we may hear something in San Antonio next month. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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