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Old 06-24-2007, 07:14 PM   #1
Chelee
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The chemo curls... lol

Before DX with bc...I had long very *fine straight* hair. I could NOT get it to curl nor would you see any kind of waves in it. Just long & STAIGHT. I finished chemo on 6-06. So its been a yr now since my last cycle of TCH. When my hair grew back in I have what I call the "chemo curls". lol Most of you can probably relate.

My question is...the women that runs this little shop where I bought my wigs, scarves, hats, prothesis, etc...she deals with mainly cancer patients all day long. She told me my hair will straighten back out any time now. I am curious if it really will because I was just going to go have it cut & now I am concerned about doing that IF its really going to straighten out. I have to admit though...I kind of like this short hair...its so nice to just wash and wear. Comb it back and go...I've never been able to do that. Saves me LOTS of time. Love that part of it.

Have any of you had the "chemo curls" at first and then your hair straightened back out? If so how long did it take?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 06-24-2007, 08:03 PM   #2
AlaskaAngel
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One answer

Chelee,

I had waist-long slightly wavy brunette hair prior to treatment that was easy to comb and easy to wave, with just a few stray gray hairs at age 50. After treatment I really liked the curliness and decided not to cut it and see what happened. The ends have stayed quite curly but the newer hair above it has come out straight. Still brunette, but with more gray here and there. When I lost my hair I figured it would be 5 years before it was the same length and that turned out to be right on target. It is not as thick or as strong as it used to be. Keeping the curls on the ends means the ends seem to constantly be tangling up and with the hair drier than it used to be it is harder to get a brush through it without breaking it and takes much longer. (Different ages and treatments might make a difference too.)

A.A.
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Old 06-24-2007, 08:36 PM   #3
Yorkiegirl
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I know with me I never had curls at all. my hair came back straight and thicker and darker than original.

It's so starnge how every one's hair comes back.
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 06-24-2007, 10:17 PM   #4
Sherryg683
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It's been 18 months since my diagnosis and my hair is still curly. I have always worn my hair very short on sides and back but long on top and it's always been straight. I don't really like these curls at all and was hoping the new hair would grow out straight but it just keeps waving and curling...sherry
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 06-25-2007, 05:21 AM   #5
bobbiw
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Pre chemo I had long reddish brown curly hair (that I had never liked UNTIL right before I was diagnosed go figure!). My hair came back absolutly straight and blond. The blond didnt last long and it then turned very dark with a few specks of grey. It is now just beginning to show a bit of a wave and is again turning color.....brown. I finished chemo May 2006. I have kept my hair short (easy to care for) and would like for it to stay straight but it will be what it is huh?
Bobbi
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Diagnosed 10-18-05 found during annual mamogram
Left mastectomy 10-27-05.
Sentinal node biopsy-node negative
IDC Grade 3 of 3
Tumor 2 cm margins clear
HER-2/neu 3+++
Er Pr +
Began chemo/AC every 3 weeks 12-6-05 followed by Taxol and weekly Hercpetin (Herceptin through June 2007)
Right prophlyactic mastectomy June 2006 with expanders. Due to have exchange surgery sometime end of May 2007.
Exchange surgery completed June 2007 with saline implants and nipples. Darned left implant is lopsided to the left due to the wrongly formed pocket and my wrongly formed chest wall!
Switched from Tamoxifen to Armidex in May due to menopause.
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Old 06-25-2007, 06:01 AM   #6
nitewind
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My hair has always been very thin, poker straight and blond. I finished chemo in January of this year. It's very slowly coming back but it is thick, straight and brown! I was kind of looking forward to a little bit of curl. Oh well, at least it's hair!
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 06-25-2007, 07:20 AM   #7
Believe51
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How Cute

Chelee, I do not know if this helps, but my husband was a strawberry-blonde and now it is salt & pepper. I am wondering the same. Either way it is the softest hair I ever felt!!..>Waiting For A Miracle..>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 06-25-2007, 07:27 AM   #8
Vi Schorpp
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My hair

My hair was straight before I lost it and it came back like curly lamb's hair. It took about a year to get back to my normal jaw-length style and it was just as straight as before. I found that my letting it grow the weight of the hair pulled it straight.
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Old 06-25-2007, 09:31 AM   #9
janet11
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Well, I'm 5 months post chemo, and my hair is now long enough (but not thick) to go EVERY which way... Not sure if this is called 'curly'. More like 'uncontrollable' (*laugh*)

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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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Old 06-25-2007, 10:37 AM   #10
juanita
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My hair was straight before and defied curling of any kind. I am now a year from herceptin and my hair is still curly. If I keep it short it is not too bad. And it's now thicker and grayer than it was before too.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 06-25-2007, 11:42 AM   #11
Louise O'Brien
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New colour

Mine has come back - white! Silvery white!
It's not my normal colour - it's usually mid-brown with a bit of salt and pepper mixed in, which I covered with highlights.

It's a huge adjustment everytime I look in the mirror but it's kind of flattering. My husband loves it; my neighbour says it looks great. It's such a drastic change I haven't had the confidence to show it to my friends just yet because I know they're going to be shocked. It's time though. This weekend - I unveil.

And I'm going to roll with it - I've got huge silver hoop earrings and will get the makeup and primary colours/black-white combos to match.
I'm just happy to have hair again.
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Old 06-25-2007, 11:46 AM   #12
charlotte
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Smile chemo curls

Hi: before chemo, my hair was straight and a nice shade of brown... when it came back, I look lilke a raccoon.. My Dr. says he thinks I would make a nice looking redhead.... still making up my mind which color or what I want to do with it.... I am just glad I have hair to talk about....( no curls either) this time...
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Old 06-25-2007, 01:07 PM   #13
MJo
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I loved my chemo curls. They lasted about 8 months. My hair is straight again, the way it was pre-chemo. Enjoy chemo curl while you can.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 06-25-2007, 09:44 PM   #14
Patricia
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being picky but overall am just so happy to have hair

First off, can I just say, I am SO grateful to just have hair now!

I used to have great thick, wavy red hair (with lots of blonde and gold highlights) before chemo (see pic below with red scarf-my avitar is after i cut it for chemo, but before it started to go) and after chemo it came back like down at 1st and was a dirty blond color. Little by little it has gotten more red and now it is clearly an auburn color, but still quite different than my color before. I have lost all of the natual shades and highlights, it is now more monotone.

As far as curls go, before I was very lucky and had very adaptable hair that was generally wavy depending on how it was styled. It came back very curly and unmanageable (see pic with my son last Thanksgiving) It was to the point that I had it straightened not long after that pic was taken.

As time has gone on and I have let it grow it seems to be getting straighter and returning to my original texture. It has been 10 mos since I finished Herceptin.

Hugs,
Patricia
Attached Images
  
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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Old 06-26-2007, 12:07 AM   #15
Adriana Mangus
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Thumbs up My answer

It's different for everyone. Mine came back curly and I did like it,then after 2-3 hair cuts it went back to straight just like before chemo. Good luck, at least you have hair...:-)
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-26-2007, 05:30 PM   #16
Liz J.
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Smile chemo curls

Hi all,

Before chemo my hair was totally unmanageable. Wavy and thick on top, straighter on bottom and always wanting to go its own way. After chemo(9/05), it started to grow like crazy. I finally broke out after three months and took the wig off during a trip to Atlantic City. That gave me the confidence to go to work without the wig. The chemo curls must have done me justice. I never had so many women ask me where I got my perm. I told most of them ( who looked like they could handle it) that I got it in the oncology office (lol). Anyhow, the curls lasted about 3 haircuts. Then a few months ago the texture got like brillo. I knew it was time to go back to short hair. Now I am getting compliments on that. As all here, I am just thankful to be telling the story. Nature takes its course and we all have a different reaction. The other day I was getting a manicure. Nails don't grow since Herceptin (but, Thank God for Vitamin H). I don't go often, mostly just for the relaxation, pampering and have some good polish put on. I ran into a woman I had met there before. She is also post BC. We were talking and all of a sudden this young woman walks in and starts complaining that the hairdresser made her look like Medussa. She announced (for all to hear) that her husband would not recognize her and he would not like all these curls. This woman and I just gave eachother the knowing look, smiled and went about out business. She was so obsessed that she is probably still in the nail salon carrying on about this. Oh well. We do learn alot.

All the best,

Liz J.
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Old 06-26-2007, 07:36 PM   #17
Bev
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Went from fine straight brown hair with highlights to gray down to fine dark brown curls. Cut that gray stuff off right away. It's approaching 2 years since the beginning of chemo and I think the curls are getting less tight at the top of my head. I hated my curls at first but now I'm going to miss them. I received many compliments on them. Even though I need a trim, I don't want to cut the curls. My son did say I looked like a sheep, but he meant that in a nice way.

It looks like eventually our hair returns to more or less it's original condition plus some well earned gray. BB.
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Old 06-26-2007, 08:14 PM   #18
Mary Jo
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Before chemo I had thick, brown hair with some gray and lots of wave. After chemo it came back curly in the back (very curly - looked like a perm) and wavy and thick everywhere else. Since a few haircuts and highlights the curl is gone. (also hardly any gray at all) I still have lots of hair (meaning thick) but my hair is pretty straight now. Especially on the top. But that's ok. Like lots of others said I have hair, so who's complaining? Like I always tell people, "since being bald there is no such thing as a bad hair day anymore." Hahahahahahahaha!

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-26-2007, 09:08 PM   #19
hutchibk
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OK, time for the the hairdresser here to weigh in...


Treatment of cancer with drugs may cause apparent complete hair loss. This is because these drugs are designed to kill cancer cells, which are cells that are growing out of control. Other cells that are growing very actively may be affected too: these may include cells in the bowel lining and also in hair follicles. This leads to a 'break' in growth and an inherent weakness. Often, once the drugs are stopped, the patient's hair starts to grow back, but when it reaches the surface it tends to break. The hair that subsequently grows may look quite different from the old. This is because the growth patterns of the sensitive cells of the hair bulb may still be upset by the effects of the drug.

So essentially, it takes time for the inherent weakness/cell sensitivity caused by the chemo to be reversed. It is like baby hair, starting all over again... and immature hair (baby hair) is inherently weaker and often extremely unruly/curly... and that combined with pissed off, sensitive chemo terrorized cells makes for interesting hair regrowth patterns. Over time as the drugs make their way out of the body and the hair starts to mature, it becomes stronger and often reverts back to hair as usual for most of us.
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NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 06-27-2007, 10:37 AM   #20
janet11
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I LOVE the image of "pissed off, sensitive chemo terrorized cells" (*laugh*) . Thanks.... (Sure describes my fingernails to a T)
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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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