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Old 06-05-2007, 09:40 AM   #1
julierene
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Location: Illinois
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julierene Update: Divorce, Children, Income Problems

I decided to delete the post, due to the advice of some of the ladies here. If you want to chat with me more, you can email me at juliereneemail@yahoo.com

I SO APPRECIATE all the words of encouragement!!!!
__________________
Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 06-05-2007, 11:18 AM   #2
Susan2
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I am so sorry about all that you are going through. You are right that your first priorities must be your health and the health of your children.

Wishing for you all the best,
Susan
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Old 06-05-2007, 12:58 PM   #3
anne2
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Julie,

I too am sorry to hear that you are going through such a difficult time. I can just say that there are some real hardships in marriage, but it sounds like your husband does little to support your in this difficult time. I hope that things will get better for you. You need to just think things through to decide what's best for you and your children.
Hugs,
Anne
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Old 06-05-2007, 01:28 PM   #4
Shell
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Julie-

You are under such pressure - I hope you are doing OK and are at least feeling OK physically? I am also hopeful there is some counseling where you are staying, so you will have some time to think about your next step, and that of your children. You didn't mention any other family on your side - any chance of their stepping in to help (or comfort)? Take time to consider your options, but don't ignore your health.

Kind regards,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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Old 06-05-2007, 01:40 PM   #5
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Let It out

Hello Friend, Your post was very informative to me and I am so sorry you have all of this going on in your life. There is nothing I can say because I am married to an Angel, but I did have a relationship that I needed to leave in fear for the life of my son(he was not the father). It was one of the hardest things for me to do, but I would have never been able to raise my 3 year old son normal if I stayed. The decision was easy to make, but the action was hard. I think the thing you need to do 'is what you are doing'. No one wants to seperate children from parents, no one wants to leave, but as hard as it was, YOU HAVE GONE TO A SHELTER, that is something to be proud of, with due respect. Please be proud of the fact that you have the strength and power to guide yourself and those beautiful children to a safe, normal life. I know you probally do not feel that way now because living in a shelter has to make you sad, but it will not be forever, Sweetheart. Many women cannot and do not have the strength to do so. I am so sorry that you have this going on when you are fighting a different battle, of course, there is no good time for any of these things to be happening. One day at a time, just like you tell yourself when you are fighting the fight. I will have you in my prayers, I will keep you there special, I will pray for you to get strong and that you find your way. I do not know if my small words of wisdom can help, but it is my way of letting you know that someday, this too shall pass. For now if you have trouble making sense out of this......just look into those little eyes of your children, they will surely remind you of the reasons why. Take care and I hope I gave something back to you today>Waiting For A Miracle>Believe51....(Marie G)

Husband dx 9/06 w/stage IV Inflammatory HER2+ Breast Cancer
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Old 06-05-2007, 04:18 PM   #6
CLTann
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I replied last time but the messages were all lost in the Forum computer problem. Anyway, I will repeat on what I wrote.

You have many serious problems. Let us sort them out:

1. Your husband is not able or capable to find work.
2. Your household income (from your work) cannot cover your expenses.
3. You have exceedingly high debts.
4. Most of all, you have serious cancer problem yourself, plus your daughter's cancer problem.
5. Your husband and in-laws cannot be counted on for help.
6. You cannot leave your job.

Solutions:
1. Marriage separation or divorce.
2. Joint custody of three kids.
3. Stay at the subsidized facility and get as much aids as you can.
4. Most importantly, get your cancer problem in control. Get your daughter's cancer problem in control.
5. Keep your job and work as long as you physically can handle.
6. Don't get involved with your husband, or better, ex husband. You are not in a position to help a no-good trash.

I may sound harsh but this is what I have analyzed and made conclusions.

Best luck.
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Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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Old 06-05-2007, 04:59 PM   #7
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink Ann's Post

Julie, RE-READ ANN'S POSTING! Brilliant analytical summary of both the problem and the solution. I second everything Ann wrote. So very sorry for your long sad tale. Ann honed in on the crux of the matter. I say go w/her advice. Focus on yourself, Sarah and your other children. You must forget about your husband and his problems. You must divorce yourself from them, quite literally, in every way imaginable. You have your own matters to attend to and musn't be dragged down by his craziness. Too bad for him. Right now -- it's all about YOU, Sarah and your kids finding health, love and as much peace as you can find! You can't get well if you're filled w/anger, resentment, blame, remorse and all that goes w/the death of a marriage. Somehow you must let that all go and let your love for your children and yourself take control of your life. With my prayers for your SURVIVAL in every sense of the word!!!! Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 06-05-2007, 07:35 PM   #8
Adriana Mangus
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Are you still on Herceptin?

Andrea: Hope all's well with you.

Do you continue with Herceptin?. If you're now NED, why continue with it?
Is is your choice or your doctor's?

I saw onc today; number went down from 67 to 55, not a huge number but significantly lower than before navelbine addition. A little victory means a lot to me and it keeps me optimistic about the future.

Next time I see him, he will order a Brain MRI, just to make sure everything is ok upstairs.

Doc., still finds hard to believe that my cancer returned, based on my initial diangosis. I guess am one of those "lucky" ones that belongs on that 20% bracket of possible recurrences. Oh well, I guess I needed a "wake-up" call or something? GRATEFUL to be here, nontheless.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-05-2007, 10:18 PM   #9
Debra
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I have to agree with Ann on this one! She laid it all out and it really sounds like you need to seriously consider those options as hard as they may be. Your husband is not going to change. If he wanted a job, he would have one by now. You can not live like this anymore nor should your children. Will your family help you out in any way?
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Debra

Diag. 11/05 at age 40 triple positive
3.8 cm tumor and 9 mm tumor
Stage IIb/SN positive(no other nodes)Grade 3
Bilat. mastect. 12/05 (Rt.prophylactic) followed with AC/taxol/Herceptin/tamoxifen then switched to arimidex after hysterectomy in 12/06. August 07 switched to Aromasin due to severe jt. pain from Arimidex. Nov. 2011 No more meds and NED!
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Old 06-06-2007, 12:29 PM   #10
Adriana Mangus
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Join Date: May 2006
Location: California
Posts: 668
Energy booster?

Hi Andi:

I love to read your postings. What energy booster are you taking.
Sometimes I feel tired, am not low on either of those cells but I know the chemo effects make you feel this way. When are you coming to California? I would love to meet you.

Please respond.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-06-2007, 04:54 PM   #11
StephN
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Wink Glad you "edited" your post!

Daer Julirene -
You ARE a smart cookie, and don't ever listen to anyone who tries to tell you otherwise!!

When you originally posted your problem (the one that got eaten in the hacker fix), I was one who suggested that you minimize your writings or anything that could be used as evidence in your battle. It is just amazing how one's words can be twisted against you and made to stick and fit into some court decision that is not your case really at all.

I just hope that you had saved Sheila's post on how to get the State help with an attorney. She had good advice there.

You will be feeling a lot better soon, as this assistance comes through, and your children get used to the idea of a new life with MOM.

Your husband will just have to learn what responsibility for this separation is HIS. When emotions are running high, it is not easy to see the best way out. Let the professionals guide you. You do have a lot of rights now.

Remember that you are a RESPONDER and let the drugs do their work like I think they can. Take comfort from your little ones and may God's blessings fill your new life.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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