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12-09-2005, 07:03 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Craniotomy pathology report
Hi everyone! Well, I feel reborn. I had my post-op check up today and my pathology report of the 1cm lesion came back negative for cancer cells. The diagnosis is radiation necrosis which can look like recurrent disease on an MRI. My surgeon said that it could appear again but they will watch it and know more for sure what it is . I will just continue to be frequently monitored. This has certainly been a tough three weeks and I appreciate the fact that I had this forum to speak my thoughts. I am posting this information, because it is important for everyone to know that there are always other possibilites than what you first learn in a diagnosis.
Best wishes and have a good weekend.
Barbara H.
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12-09-2005, 08:00 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 556
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Congratulation,I am very happy for you. You deserve the much needed good news.
julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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12-09-2005, 08:01 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Maine
Posts: 97
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Wonderful news Barbara!
Take care,
Pat
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12-09-2005, 09:29 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Ahhhhhhhhhhh Barbara that was me breathing a sigh of relief for you!!!!!!oh I guess it's suppossed to be phewwwwwwwwwwww!!! Wow great news and such a load off your shoulders.....I'm sure...That is really great and always encouraging for the rest of us!!!! Thanks for sharing!!!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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12-10-2005, 05:53 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Barbara
That is great news...you deserve it...makes the holidays even happier. Our prayers for you have been answered.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-10-2005, 10:29 AM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Barbara, GREAT NEWS! Thanks for sharing this with us, it really does encourage all to stay on top things.
In your reply to Robin's post about late Hreceptin for early stage, you mentioned that
for your treatment of mets, "...Two doses of Herceptin put my tumor markers in the the normal range and they have remained normal with no other chemo..."
Are you still on Herceptin?
<3 Lolly
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12-10-2005, 01:53 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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To Lolly
Yes, Lolly. I have been on Herceptin since July 04 and will continue on it as long as it works, or until something else comes along.
Best wishes,
Barbara H.
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12-10-2005, 01:58 PM
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#8
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Guest
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Barbara,
yep! I just knew it....necrosis and NO further cancer cells.
Easy for me to say, right? But I did hope with a certain certainty that this would be the case! Yea!!!
hugs,
pattyz
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12-10-2005, 03:02 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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This is wonderful news Barbara. I can't tell you how happy I am everytime another hurdle is jumped. Just excellent news at the most excellent time of year. 2006 is looking better and better.
Love and Peace
Becky
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12-10-2005, 10:58 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: New York
Posts: 90
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Annemarie
Great news! Now you can breathe again and enjoy the holidays. This same thing happened to me twice. The necrosis where I had the gamma knife keeps increasing but the brain PET showed I am clear. I go again on Tuesday for my 8 week monitoring.
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