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		|  10-03-2012, 06:40 PM | #1 |  
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				First post-treatment scan and I am beyond freaked out
			 
 Well, the day is slowly creeping up on me and every minute I feel more and more anxious. I have my first MRI post chemo and radiation. I'm still on herceptin every 3 weeks. I am so frightened that they will find something and this fear has completely paralyzed me. Everyone wants to make plans for next week and clients want to firm up meetings but all I can think about is this stupid MRI. I have lost sleep, big time. My doctor gave me some tiny little pills that are suppose to relax me but I have a feeling I will need the dose for an elephant.I think I'm so scared because I have had a slight pain near my right rib cage. It comes an goes. Sometimes I've gone a month without feeling a thing. I keep thinking it may be mets to, oh gee...lung/bones/liver...or any organ in that area. I have burst into tears at the idea of going down that road. The only thing that is slightly making me feel like I have a good shot at it being clear is that I recently qualified for the Metformin trial and they took ridiculous amounts of blood. they tested me for EVERYTHING including markers and my liver function. So I assume if I had any active cells something would of popped up in my blood.
 I just don't know if I can live fearing things like MRIs. I hate being scared. And I'm a fiery redhead (well I was, hair grew back auburn)...I was never scared of anything. Until now.
 
				__________________ 
				DX 10/2011 
PET Scan + MRI 10/2011 
Lumpectomy 11/11/11 
Stage 2B +++  ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) 
AC started 12/2011 ended 1/2012 
Taxol + Herceptin weekly for 12 weeks ended 4/2012 
30 zaps of radiation done 6/2012 
Tamoxifen 6/2012  
every 3 weeks of Herceptin for another year. 
Metformin Trial 8/12 
10/12 MRI- CLEAR 
01/13 BRAIN MRI- CLEAR! 
01/13 Neck MRI- CLEAR! 
FINISHED HERCEPTIN 1/9/2013...Woot Woot 
Starting Walter Reed Vaccine Trial 2/13 
CT Scans + ultrasound of abdomen CLEAR-5/13 
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging  
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.  
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 
7/27/2018 hysterectomy and oopherectomy 
01/07/2019 Mastectomy and expanders put in 
3/22/2019 Vtach, almost died. Cause unknown.  
7/22/2019 New perky boobs put in  
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. 
www.mychemobag.org
www.facebook.com/mychemobag
 8 YEARS NED |  
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		|  10-03-2012, 07:49 PM | #2 |  
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				Join Date: Sep 2005 Location: Ontario, Canada 
					Posts: 752
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Europa;
 I so totally understand your feelings.  I also have had pain in my ribs that comes and goes.....for 6 years!!  It must be from the operation and many scans have shown no mets....perhaps this is you too.  However, at this point until someone tells you they have found mets please try not to worry.  When I was first diagnosed and before I found this site, I knew a woman in the next town who had breast cancer.  Whenever I would feel panic I would call her.  She would calm me down by reminding me that no one was telling me something horrible, that at that point I had nothing to worry about.  I found that over time knowledge was truly power.  The more I learned from this site about my cancer the more relaxed I became....not all the time of course...these tests are truly taxing...but we have every reason to be positive and hopeful today and so do you.  Europa, I don't know if this helps but I hope so.  I'll be watching for your results.  Take care.
 
 Cathy
 
 
				__________________Cathy
 
 Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
 Diagnosed Jan. 2005 tumor in supraclavicular node
 Stage 3c, Grade 3, ER/PR+, Her2++
 4 AC, 4 Taxol, Radiation, Arimidex, Actonel
 Herceptin for 9 months until Muga dropped and heart enlarged
 Restarting herceptin weekly after 4 months off
 Stopped herceptin after four weekly treatments....score dropped to 41
 Finished 6 years Arimidex
 May 2015 diagnosed with ovarian cancer
 Stage 1C
 started 6 treatments of carboplatin/taxol
 Genetic testing show BRCA1 VUS
 Nice! My hair came back really curly. Hope it lasts lol.  Well it didn't but I liked it so I'm now a perm lady
 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
 April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
 Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
 To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
 Genetic testing of ovarian tumour and this new lung met will take months.
 To see geneticist to be retested for BRCA this week....still BRCA VUS
 CA125 has declined from 359 to 12 as of Aug.23/18
 
 
 
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		|  10-03-2012, 08:01 PM | #3 |  
	| Senior Member 
				 
				Join Date: Jan 2007 Location: Thornhill, Ontario
Canada 
					Posts: 2,320
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Hi Europa,
 Sweetie, the first scans after treatment are always the most worrisome - you don't want to go back to that place, and of course you are nervous (hey, terrified even). But remember that you have had excellent treatment, are still on Herceptin, and like you said, had major blood work that I assume was great...
 
 I can tell you that as a nearly six year survivor, the fear and anxiety will get better. Cathya gives good advice - until someone tells you that you have mets - you don't. Be vigilant, of course - I think most of us follow the 2-3 week guideline i.e. it something is hurting/bothering you consistently for 2 -3 weeks, see your onc.
 
 Take the Ativan (I am guessing those are the little white pills the dr. gave you for the MRI) - ask what the max. amount you can take before the test, and take 'em.
 
 Let us know how it goes. You'll be okay, wait and see.
 
 all the best
 caya
 
				__________________ER90%+/PR 50%+/HER 2+
 1.7 cm and 1.0 cm.
 Stage 1, grade 2, Node Negative (16 nodes tested)
 MRM Dec.18/06
 3 x FEC, 3 x Taxotere
 Herceptin - every 3 weeks for a year, finished May 8/08
 Tamoxifen - 2 1/2 years
 Femara - Jan. 1, 2010 - July 18, 2012
 BRCA1/BRCA2 Negative
 Dignosed 10/16/06, age 48 , premenopausal
 Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
 Reclast infusion January 2012
 Oopherectomy October 2013
 15 Years NED!!
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		|  10-03-2012, 08:26 PM | #4 |  
	| Senior Member 
				 
				Join Date: Sep 2005 Location: Stockton, NJ 
					Posts: 4,179
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Dear Europa
 I am 8 years out and have rib pain on my cancer side (rt).  It is not as bad as it used to be but early on, it really freaked me out.  I also had a lumpectomy and when the colder weather starts to come in, my breast scar seems to pull.  In the beginning, when I still had follow ups with the surgeon, she said this is normal for some women.
 
 This is a scary time - it lasts for alittle while (2-3 years but the fear wanes during that time).  But right now is the scariest.  After awhile, you really won't think about it too much.  I will say that I do get anxious during mammos etc.  I figure it could happen again so this is very normal.
 
 We are here for you and the mri will be behind you soon enough.
 
 Big hugs to you.
 
				__________________Kind regards
 
 Becky
 
 Found lump via BSE
 Diagnosed 8/04 at age 45
 1.9cm tumor, ER+PR-, Her2 3+(rt side)
 2 micromets to sentinel node
 Stage 2A
 left 3mm DCIS - low grade ER+PR+Her2 neg
 lumpectomies 9/7/04
 4DD AC followed by 4 DD taxol
 Used Leukine instead of Neulasta
 35 rads on right side only
 4/05 started Tamoxifen
 Started Herceptin 4 months after last Taxol due to
 trial results and 2005 ASCO meeting & recommendations
 Oophorectomy 8/05
 Started Arimidex 9/05
 Finished Herceptin (16 months) 9/06
 Arimidex Only
 Prolia every 6 months for osteopenia
 
 NED 18 years!
 
 Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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		|  10-04-2012, 05:46 AM | #5 |  
	| Senior Member 
				 
				Join Date: Jan 2012 
					Posts: 362
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Thank you all. I took an Ativan last night and felt fabulous. I think every human being should have these on hand.I also put a hot pad on my back and ribs and the pain went away. The pain in my ribs is on the other side (not my bc side), and that is why I am so scared. My bc was on my left and the pain is on my right so I fear the worst. But this morning I feel nothing. I guess tomorrow will tell.
 My onc said that if they find something I will get a call. So, I my "pop open a bottle of sparkling apple cider" moment will be 630pm.
 
				__________________ 
				DX 10/2011 
PET Scan + MRI 10/2011 
Lumpectomy 11/11/11 
Stage 2B +++  ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) 
AC started 12/2011 ended 1/2012 
Taxol + Herceptin weekly for 12 weeks ended 4/2012 
30 zaps of radiation done 6/2012 
Tamoxifen 6/2012  
every 3 weeks of Herceptin for another year. 
Metformin Trial 8/12 
10/12 MRI- CLEAR 
01/13 BRAIN MRI- CLEAR! 
01/13 Neck MRI- CLEAR! 
FINISHED HERCEPTIN 1/9/2013...Woot Woot 
Starting Walter Reed Vaccine Trial 2/13 
CT Scans + ultrasound of abdomen CLEAR-5/13 
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging  
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.  
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 
7/27/2018 hysterectomy and oopherectomy 
01/07/2019 Mastectomy and expanders put in 
3/22/2019 Vtach, almost died. Cause unknown.  
7/22/2019 New perky boobs put in  
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. 
www.mychemobag.org
www.facebook.com/mychemobag
 8 YEARS NED |  
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		|  10-04-2012, 11:04 AM | #6 |  
	| Senior Member 
				 
				Join Date: Jun 2007 
					Posts: 2,210
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Ah, Ativan and a hot pad! Sounds perfect. Take as needed!Keep us informed and keep the faith.
 
				__________________Bonnie
 
 Post menopause
 May 2007 Core biopsy, Rt breast
 ER+, Pr-, HER2 +++, Grade 3
 Ki-67: 90%
 "suspicious area" left breast
 Bilateral mastectomy, (NED on left) May 2007
 Sentinel Node Neg
 Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
 Femara (discontinued 7/07) Resumed 10/07
 OncoType score 36 (July 07)
 Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
 Began Herceptin alone 10/07
 Finished Herceptin July /08
 D/C Femara 4/10 (joint pain/trigger thumb!)
 5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
 Aromasin started 5/10
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		|  10-04-2012, 02:08 PM | #7 |  
	| Senior Member 
				 
				Join Date: May 2006 Location: Haarlem, the Netherlands 
					Posts: 835
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Dear Europa,
 Been there, done that. That first test after treatment flattened me. I felt that making appointments for the next week would be tempting fate. I totally went to pieces. It was almost anticlimactic when I got the results: Everything's fine.
 
 I had this wonderful tech for the mammo who showed me on the screen what she was seeing, which was all normal, then she went to show the images to the doc, who looked at them straight away and declared that there was nothing to worry about. Then she came back and said: I'm not allowed to tell you that the doctor said everything is fine, so I never said this.
 
 I almost hugged her. She said: I know what it's like, the first time.
 
 I wish you great techs and wonderful docs.
 
 Love
 
 Jacqueline
 
				__________________Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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		|  10-05-2012, 05:17 PM | #8 |  
	| Senior Member 
				 
				Join Date: Jan 2012 
					Posts: 362
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 I survived the MRI. I haven't gotten a call from the doctor and was told that if they found something they would call. Not doing the victory dance yet...until Tuesday afternoon. But I am so thankful it's over. Now for a little pizza and Ativan....nite nite 
				__________________ 
				DX 10/2011 
PET Scan + MRI 10/2011 
Lumpectomy 11/11/11 
Stage 2B +++  ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) 
AC started 12/2011 ended 1/2012 
Taxol + Herceptin weekly for 12 weeks ended 4/2012 
30 zaps of radiation done 6/2012 
Tamoxifen 6/2012  
every 3 weeks of Herceptin for another year. 
Metformin Trial 8/12 
10/12 MRI- CLEAR 
01/13 BRAIN MRI- CLEAR! 
01/13 Neck MRI- CLEAR! 
FINISHED HERCEPTIN 1/9/2013...Woot Woot 
Starting Walter Reed Vaccine Trial 2/13 
CT Scans + ultrasound of abdomen CLEAR-5/13 
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging  
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.  
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 
7/27/2018 hysterectomy and oopherectomy 
01/07/2019 Mastectomy and expanders put in 
3/22/2019 Vtach, almost died. Cause unknown.  
7/22/2019 New perky boobs put in  
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. 
www.mychemobag.org
www.facebook.com/mychemobag
 8 YEARS NED |  
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		|  10-05-2012, 10:19 PM | #9 |  
	| Senior Member 
				 
				Join Date: Jul 2011 
					Posts: 954
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Hope Tuesday brings great news!     
Paula |  
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		|  10-06-2012, 12:02 PM | #10 |  
	| Senior Member 
				 
				Join Date: Jan 2008 Location: "Love never fails." 
					Posts: 5,809
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Europa, 
My recurrence five years ago was exactly like yours: Stage 2B with two nodes. I was only able to get 4 weekly Herceptin after six rounds (18 weeks) of TCH. So far I've been doing well breast cancer wise. (I have a history of brain tumor since childhood - not found until I was 30.    
Take deep breaths when you are doing the scan - I always hyperventilates when I am inside the tube.
  
Sending you good vibes...
				__________________Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html 
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
 
NICU 4.4 LB
Erythema Nodosum 85 
Life-long Central Neurocytoma 4x5x6.5 cm  23 hrs 62090 semi-coma 10 d PT OT ST 30 d 
3 Infertility tmts 99 > 3 u. fibroids > Pills 
CN 3 GKRS 52301 
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen 
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 
6 TCH Cellulitis - Lymphedema - compression sleeve & glove 
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan 
Irrtbl bowel 1'09 
Colonoscopy 313 
BRCA1 V1247I 
hptc hemangioma 
Vertigo 
GI - > yogurt 
hysterectomy/oophorectomy 011410 
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk 
DEXA 1/13 
1-2016  lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 
3-11 Appendectomy - visually O.K., a lot of puss.  Final path result - not cancer. 
Start Vitamin D3 and Calcium supplement (600mg x2)  
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior.  Due to possible adenocarcinoma, Recommend annual surveilence. 
7-10-2019 CT to check lung nodule. 
 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
 
Advocacy is a passion .. not a pastime - Joe |  
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		|  10-06-2012, 06:33 PM | #11 |  
	| Senior Member 
				 
				Join Date: Dec 2009 
					Posts: 562
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 FYI:  Back in the days when I wanted news fast, I always called.  I never waited.  Now, I don't mind waiting but I have found that if it's good news, the doctor will authorize a secretary to tell you and if it's bad they want you to come in, or they at least tell you on the phone.  So, try that so you don't have to wait.  
 I'm sure it's good news by now!
 
				__________________  http://butdoctorihatepink.com 
08/17/09  Dx'd. 
Multifocal/multicentric IDC,  largest 3.4 cm, associated ADH, LCIS, DCIS 
HER2+ ER+/PR- Grade 3, Node Negative
 
10/20/2009:  Right mastectomy, reconstruction with TE 
12/02/2009:  Six rounds TCH, switched to Taxol halfway through due to neuropathy 
03/31/2010:  Finished chemo 
05/01/2010:  Began tamoxifen, the worst drug ever 
11/18/2010:  Reconstruction completed 
12/02/2010:  Finished herceptin 
05/21/2011:  Liver Mets.  Quit Tamoxifen 
06/22/2011:  Navelbine/Zometa/Herceptin 
10/03/2011:  Liver Resection, left lobe.  Microwave      ablation, right lobe - going for cure! 
11/26/2011:  C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 
03/28/2012:   Progression in ablated section of the          liver - no more cure.  Started Abraxane, continue herceptin/zometa 
10/10/2012:  Progression continues, started Halaven, along with herceptin and zometa.  
01/15/2013:  Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 
03/13/2013:   Quit Gemzar, body just won't handle it.  Staying on herceptin, zometa and perjeta.   
04/03/2013:   CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa.  Can't argue with success! 
05/09/2013:  Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 
06/07/2013:  Fiducial placement for SBRT 
07/03/2013:  Chemo discontinued, on Perjeta, Herceptin and Zometa alone 
07/25/2013: SBRT (gamma knife) begins 
08/01/2013: SBRT completed 
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 
06/18/2014: ***** NED!!!!*****  continuing with Perjeta, Herceptin, Zometa 
01/29/2014: Still NED.  continuing with Perjeta, Herceptin.  Zometa lowered to every 3 months instead of monthly. 
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
 
5/27/18:  Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. 
 
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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		|  10-06-2012, 06:34 PM | #12 |  
	| Senior Member 
				 
				Join Date: Jan 2012 
					Posts: 362
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Thank you so much! I am hoping to hear nothing on Tuesday. 
 Jackie: that tube was a bit intimidating. But thankfully I'm okay with small spaces. But once every 3-6 months is enough for me.
 
				__________________ 
				DX 10/2011 
PET Scan + MRI 10/2011 
Lumpectomy 11/11/11 
Stage 2B +++  ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) 
AC started 12/2011 ended 1/2012 
Taxol + Herceptin weekly for 12 weeks ended 4/2012 
30 zaps of radiation done 6/2012 
Tamoxifen 6/2012  
every 3 weeks of Herceptin for another year. 
Metformin Trial 8/12 
10/12 MRI- CLEAR 
01/13 BRAIN MRI- CLEAR! 
01/13 Neck MRI- CLEAR! 
FINISHED HERCEPTIN 1/9/2013...Woot Woot 
Starting Walter Reed Vaccine Trial 2/13 
CT Scans + ultrasound of abdomen CLEAR-5/13 
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging  
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.  
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 
7/27/2018 hysterectomy and oopherectomy 
01/07/2019 Mastectomy and expanders put in 
3/22/2019 Vtach, almost died. Cause unknown.  
7/22/2019 New perky boobs put in  
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. 
www.mychemobag.org
www.facebook.com/mychemobag
 8 YEARS NED |  
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		|  10-07-2012, 08:40 AM | #13 |  
	| Senior Member 
				 
				Join Date: Mar 2010 Location: Thornhill Ontario
Canada 
					Posts: 266
				 
		 
		 
		
		 
		
		
	
		
	
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				Re: First post-treatment scan and I am beyond freaked out
			 
 Hi Europa Great advice from the ladies! It certainly is anxiety provoking having scans but it does get better. That advice that you dont have mets until someone tells you that you do is wonderful advice. I will keep that in mind when I next have to have any kind of scan to keep that anxiety in check. I am coming up five years soon and it really does get better. Oh yes, ativan, heating pad, comfy slippers, tea etc. etc. I love you all  xoxo 
				__________________August 2008
 Lumpectomy left breast
 1 tumour 0.9 cm
 Her2 negative
 lymph nodes negative
 venous/lymphatic invasion absent
 ER+PR-
 Stage I Grade 2
 Radiation and Femara
 
 November 2008
 Lumpectomy right breast
 2 tumours .03 cm and .05 cm and extensive DCIS
 .05 tumour Her2+
 lymph node negative
 venous/lymphatic invasion "indeterminate"
 ER+PR low postive
 Stage 1 Grade 2
 
 January 2009
 bilateral mastectomy
 chemotherapy taxotere
 Herceptin one year
 Femara
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		|  10-08-2012, 02:39 PM | #14 |  
	| Senior Member 
				 
				Join Date: Jan 2012 
					Posts: 362
				 
		 
		 
		
		 
		
		
	
		
	
	 | 
				
				Re: First post-treatment scan and I am beyond freaked out
			 
 So far, no call from the doctor's office. I'm giving it until tomorrow. Just in case. Then, tomorrow night, I will be doing the happy dance. 
				__________________ 
				DX 10/2011 
PET Scan + MRI 10/2011 
Lumpectomy 11/11/11 
Stage 2B +++  ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) 
AC started 12/2011 ended 1/2012 
Taxol + Herceptin weekly for 12 weeks ended 4/2012 
30 zaps of radiation done 6/2012 
Tamoxifen 6/2012  
every 3 weeks of Herceptin for another year. 
Metformin Trial 8/12 
10/12 MRI- CLEAR 
01/13 BRAIN MRI- CLEAR! 
01/13 Neck MRI- CLEAR! 
FINISHED HERCEPTIN 1/9/2013...Woot Woot 
Starting Walter Reed Vaccine Trial 2/13 
CT Scans + ultrasound of abdomen CLEAR-5/13 
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging  
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.  
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 
7/27/2018 hysterectomy and oopherectomy 
01/07/2019 Mastectomy and expanders put in 
3/22/2019 Vtach, almost died. Cause unknown.  
7/22/2019 New perky boobs put in  
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. 
www.mychemobag.org
www.facebook.com/mychemobag
 8 YEARS NED |  
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