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Message from a coward
Got ct scan results today. Lung areas show decrease. Skin mets and lymph/chest wall mets increasing. So am going back on Herceptin along with the Xeloda/Tyverb that I'm already on. Have been told that this combination has been known to work for my situation. Anyone tried this? Had to go to doctor for painkillers last week cos of pain in rib, especially when bending, got Naprosyn for this. I immediately thought bone mets so we are 'watching' it and will have bone scan if still have pain in 2 weeks. Had bone scan end of June and it didnt show any trouble there. Getting scan results is SO stressful and this will be how it is from now on. Have been reading posts from stage iv people who have been dealing with it for years (the lucky ones), would love to know if theres a formula out there to transform me from the big coward that I am, had to take anti nausea pills today cos I was so nervous of the results.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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