Scanxiety denied...license to breathe renewed
Dear friends,
This has been such a horrible couple of months with terrible losses...and despite feeling well I couldn't help but feel a sense of dread about my 4-month scans. I know we're all in serious need of some good news...
so I will share some.
I haven't seen the reports yet from my Pet/CT and Echo last week, but there was a message on my answering machine at home that used the words "scans" and "fabulous" in the same sentence...and that is enough for me for now!
The TDM1 is still doing the job!...and my focus is to try and stay healthy so I can continue on the study. Been having some issues with platelets lately, and my last labs were all over the place on the liver functions (but that could have been due to being in Las Vegas for the 3 days prior, including a few cocktails). Back to the beet juice and carrot salad for me.
So it's all praise to God, I feel so blessed...
and
I pray that approval and access for TDM1 will be accelerated quickly...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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