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Old 09-20-2009, 10:53 AM   #1
bejuce
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Research advances in Europe and elsewhere?

Just read a story (people.com) about a woman who regained her vision with an operation developed in Italy using one of her teeth to hold an optical lens and hydrate her eye.

What struck me about the story was that the procedure had already been performed in about a thousand patients abroad but due to the US being "conservative" was only now performed here.

So that got me thinking into what kind of therapies, drugs, trials, and research are being developed overseas that we're not aware of here. Does anyone know of any HER-2+ efforts currently underway abroad? How do we make sure that we as patients will have access to them sooner rather than later?

Thanks!!
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-20-2009, 11:17 AM   #2
AlaskaAngel
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Re: Research advances in Europe and elsewhere?

Hi bejuce,

The St. Gallen symposium provides good info:

http://www.stgallen-symposium.org/

It discusses and offers the European recommendations for breast cancer.

Try doing a search on this forum using just the word gallen, as there have been posts here before that summarize or link some of the info provided from past St. Gallen meetings.
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Old 09-20-2009, 11:23 AM   #3
AlaskaAngel
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Re: Research advances in Europe and elsewhere?

Here is one link, for example:

http://www.genomeweb.com/dxpgx/st-ga...er-genetic-tes
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Old 10-01-2009, 10:42 PM   #4
bejuce
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Re: Research advances in Europe and elsewhere?

Thank you, AlaskaAngel!! I think it's safe to say that if anything new comes along in terms of trials, drugs, and so on, I'll likely hear about it here first. This board is the best!

Thanks!
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 10-03-2009, 12:15 PM   #5
AlaskaAngel
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Re: Research advances in Europe and elsewhere?

Hi Bejuce,

HER2support is based in the USA, but the audience and membership here are international. All too often when people in the USA post, it is from the standpoint of what regimens or tests have been approved in the USA or are commonly used here, which can be very different from the rest of the world (including for our closest neighbors in Canada and Mexico). As you say, prominent research elsewhere is continuing and valuable. Thanks for the reminder!

A.A.
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