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08-25-2009, 11:17 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Do we need a nutrition forum PART 2...***JOE***
I emailed Diana Dyer and this was the response I got as WELL as an interesting article on her blog about Her2. ALSO Joe, can I give her YOUR email address?
Rhonda,
Thank you for visiting my web site. I agree with the recommendation to have an RD (preferrably one certified in oncology nutrition - CSO) available to moderate a nutrition forum. I cannot do this but if you would like me to, I could put out a query to the listserv of oncology dietitians throughout the country and hopefully someone else would be interested. Who should I list as the contact name/email?
Hope you saw the recent post on my blog about CLA and her2/neu breast cancer.
http://www.dianadyer.com/2009/08/my-...on-cla-in.html
Diana Dyer
--------
Diana Grant Dyer, MS, RD - Author
A Dietitian's Cancer Story (English and Spanish editions)
Available from all bookstores, Amazon.com, and AICR (1-800-843-8114)
Web site: www.CancerRD.com
Blogs: www.DianaDyer.com, www.365DaysofKale.com, and www.cancervictorygardens.blogspot.com
"Information and Inspiration for Cancer Survivors"
Proceeds donated to the Diana Dyer Cancer Survivors'
Nutrition and Cancer Research Endowment at the
American Institute for Cancer Research (AICR)]
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-25-2009, 08:40 PM
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#2
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Do we need a nutrition forum PART 2...***JOE***
Thanks, Rhonda, I really want this forum and appreciate you reaching out to Diana Dyer.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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08-25-2009, 09:35 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Do we need a nutrition forum PART 2...***JOE***
I really want the nutrition forum too, so if we can't find help through Diana Dyer,maybe we should ask someone on Dr. Kenneth Block's nutrition staff or from one of the hospitals where they offer nutrition services during cancer treatment like M. D. Anderson or Cancer Treatment Centers of America. Another choice might be Patrick Quillin Ph.D. RD. GNS. who has written several books about nutrition and cancer.
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08-26-2009, 02:56 AM
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#4
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Do we need a nutrition forum PART 2...***JOE***
I agree and definitely would like this forum. I think there is stil so much we don't understand about the biochemical effect of food on our body and bc that sharing what might be helpful has got to be a bonus
Ellie
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08-27-2009, 12:07 PM
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#5
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Re: Do we need a nutrition forum PART 2...***JOE***
I have interviewed several Nutritionists and we should reach a final selection by the weekend and have the new board up by next week.
My thanks to Rhonda for reaching out to Diana Dyer.
Warmest Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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08-27-2009, 12:16 PM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Do we need a nutrition forum PART 2...***JOE***
I can wait to read this section of the Board.
Amelia
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08-27-2009, 04:15 PM
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#7
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Do we need a nutrition forum PART 2...***JOE***
Thanks Joe !!
I am looking forward to the nutrition Forum so much.
Having a nutrition board (forum) is certainly a welcome addition to this group.
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08-27-2009, 04:17 PM
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#8
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Do we need a nutrition forum PART 2...***JOE***
Ditto Joe. This will be a great addition to the already great board!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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08-27-2009, 07:42 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: Do we need a nutrition forum PART 2...***JOE***
can't wait for this new thread!!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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08-30-2009, 02:25 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Do we need a nutrition forum PART 2...***JOE***
thanks Joe for doing this. Your site is a miracle.
sarah
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09-02-2009, 09:04 AM
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#11
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Re: Do we need a nutrition forum PART 2...***JOE***
The new board is up and running.
ENJOY !!
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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09-02-2009, 10:40 AM
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#12
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Do we need a nutrition forum PART 2...***JOE***
Thank you Joe and Christine for all the wonderful services you provide for us here.
You are both a blessing.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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09-02-2009, 10:54 AM
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#13
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Do we need a nutrition forum PART 2...***JOE***
Thanks, Joe -
We are "on it" already!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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