 |
07-24-2008, 09:16 AM
|
#1
|
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
Headaches? Ugh...
So, it's about time for me to have a suspicious symptom, and here it goes...
For about a week, I have been having (what I can best describe as) headaches. However, it is only around my eyes (a stabbing feeling), sometimes down the right jaw, and tends to happen in the evenings. I am having one right now, and this is the first one to happen during the day. I am not having any other neurological issues...
I tried looking up tension, cluster, and migraines, but it hard to pinpoint what this is. I asked my husband to give me an MRI, but I am thinking that might be jumping the gun.
I have had some sinus issues for months, and also think I may be clenching my jaw at night (and sometimes during the day). I am on day 6 of NOT taking Ativan to sleep--for the first time in 18 months. I have also started having some night hot flashes (from the Tamoxifen, I guess). They aren't too bad, and I can usually just wait them out without having to try to cool myself off. Oh, and business sucks during July. Lot of stress going on here.
Any idea if I should take Motrin and see what happens, see my PCP, get the MRI, or call my ONC.? I am not all that worried, but just waiting for one to happen is starting to get on my nerves.
Thanks, ladies (and gentlemen)!
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
|
|
|
07-24-2008, 11:38 AM
|
#2
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
The first thing I thought of when you said "behind the eyes" is sinus pressure.
Just a thought....
MJ
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
07-24-2008, 02:13 PM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
You've put forth a lot of theories on what could be causing it, I mean stopping a med, stress, etc. These could be valid reasons you are having headaches. I have a lot of sinus headaches myself.
I go by the 2 week rule. If your symptoms continue for 2 weeks, get it checked out.
Did you say your husband could give you an MRI?
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
07-24-2008, 02:35 PM
|
#4
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Ditto what Chrisy said. Also I suffer from "TMJ". My jaw is out on one side and when I am under more stress then usual I do chench my jaw which I noticed you mentioned doing. I've had a "ENT" (ears, throat & nose) doctor explain how the jaw can cause these headaches.
You mentioned alot of things going on so I would almost think it strange if you didn't have a headache under those circumstances. I would wait the two weeks and go from there. In my cause if my headache won't go away after about two or three wks I do get the MRI. I have to for peace of mind or I would go insane. I have a feeling your headache is a combination of all those things you mentioned. It can't hurt to try the motrin. If its the jaw...that certainly won't hurt you any.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
07-24-2008, 05:56 PM
|
#5
|
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
Thanks, ladies! Funny enough, I think it is sinus, jaw AND tension that is causing them.
Yes, Todd said he would give me an MRI, but it freaks me out to have him sitting there looking at the scan as it comes up. I have these horrible visions of him bursting into the room with a terrified look on his face. I know--hypo Krista, here.
It is about 9:00, and this is when they usually start. We just got back from Cooper's birthday party, so I am pretty relaxed. We shall see what tonight brings.
Thank you so much as always!
Krista
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
Last edited by kcherub; 07-24-2008 at 05:57 PM..
Reason: I had to correct spelling, or I would have gone crazy.
|
|
|
07-24-2008, 08:51 PM
|
#6
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
how's your blood pressure? when mine was high i got headaches in the evenings.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
07-24-2008, 09:15 PM
|
#7
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Hey Krista! It sounds like so many factors could be causing your headaches, but I think you should go for the MRI, for your own peace of mind. Get the MRI, the sooner the better. You make it sound like Todd has one in the garage next to the Mustang, so I'd go for it. Keep us posted, sweetie, Bill
__________________
For Nicola
|
|
|
07-25-2008, 12:29 AM
|
#8
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Krista, are you a clencher? One sign is to feel or look inside you cheeks for a horizontal ridge. It may be more prominent in the morning if you were clenching when you were sleeping. You can also feel for the ridge with your tongue.
Or...look at the borders of your tongue. Do you see scalloped ridges around the border? Another sign of clenching.
Clenching, stress, headaches, TMJ, can all be related and are very common.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
07-25-2008, 06:09 AM
|
#9
|
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
Inside of cheeks...
Oh, my gosh! Yes, Harrie!!! The ridges drive me nuts, as I am always touching them with my tongue, or trying to bit them (gross, I know). I have been trying to get a dentist appointment forever. It has been since March 2007 (before treatment) and I need to get in there...
I didn't have a headache last night, and (I am quite proud to add), slept like a baby without Ativan.
Thanks!
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
|
|
|
07-25-2008, 06:13 AM
|
#10
|
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
Actually, Bill...
it's a Camaro. LOL
I know that I kind of take the option of an MRI lightly, although I have been pretty good about it. I had a brain MRI in 2004 (when my panic attacks started)--just a little cyst right in the middle, but nowhere near anything. I had another brain MRI in October 2007, but I can't remember why--there was something, and I bet if I go back through old posts I will remember (TEE-hee). The little cyst was there, but nothing else. I had a spin MRI in March 2008, due to the horrible lower back pain. That one showed two areas where the discs were bulging, but nothing else.
Sounds like somebody's got a date on Saturday night at the MSCATL! No wine, but I will be taking a Xanax.
Take care,
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
|
|
|
07-25-2008, 03:05 PM
|
#11
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Krista, it sounds like the amount of ridges you have on your tongue indicates significant amounts of clenching. What happens when a persons clenches, along with the cheek muscles tightening, the tongue can also be forcefully pushed against the teeth causing the ridged look of the indentation of the teeth. Also many times I see the ridge inside the cheeks from the cheeks being pushed against the teeth. Stress is the most common reason why people clench.
When not stressed, the tongue should be in a relaxed position on the floor of the mouth and the upper and lower arch of the teeth, not in occlusion.
Clenching can cause tension on the temporal mandibular joint (TMJ), can cause muscular tightness in the neck and shoulders, cause headaches, and over time, can cause trauma to the teeth and can cause the gingiva (gums) to recede.
What I would recommend is to be aware of tension held in your head and neck area. When you feel those muscles tightening...relax and breathe. Short superficial breathing or held breaths will only aggrevate tension held in the body.
Massages are good.
Sleeping well at night is important.
Improving ways to psychologically dealing with thoughts that can contribute to stress is also important.
How you discribed the way the pain radiates from down the side of your face towards your jaw makes it appear to me that is mostly a clenching type symptom.
Maryanne
ps...what is 3 embies on ice?
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
Last edited by harrie; 07-25-2008 at 03:08 PM..
|
|
|
07-25-2008, 05:56 PM
|
#12
|
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
Maryanne...thanks again! I am going to see one of the neuros that Todd works with next week, and he will determine who I need to see outside of him. I will also let him make the determination of whether or not I need an MRI.
You know--before I started taking the Ativan at bedtime, I was clenching like crazy, and was very aware of it. I wonder if I am clenching again now--it would make sense that I stopped taking the Ativan nightly, and then a night or so later started with the "headaches". BTW, my tongue (on the sides) looks like a piece of scrapbook paper with the little scallops. I am so glad you went further on all of this. While I am going to check it out, it helps with my teeny, tiny hidden fears. Once again, I love this board even if to just give me a few days of worry relief.
The "embies" are frozen embryos--toticles, in perpetual daycare, as we say around here. LOL
Take care,
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 06:20 AM.
|