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10-02-2007, 08:59 AM
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#1
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Senior Member
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
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supplements and other do's and don'ts
I thought it might be interesting as well as give some of us newbies some info on what supplements all of you have started since being DX. As well as what foods you stay away from. No long list of technical jargen just a list and why. I know for me it all seems so overwhelming and I think I need to just go to the pahrmacy and get a bottle of everything. I personally have never been one for major research ( which I know can be a downfall in the situation we are in) but I find things much easier to wrap my brain around in simple list form. I'm very interested in all your input!
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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10-02-2007, 09:02 AM
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#2
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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supplements
I also would benefit from a sort of concise list of the do's and don'ts. When I read the long and technical info, I end up more confused.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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10-02-2007, 12:30 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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My Supplement List
This should be the link IN POST BELOW to my 6/30 post/new thread TO "SUPPLEMENT" OR WAIT, w/dosages and reasons for taking each. All from Dr. Mitchell Gaynor (recent thread on him by Brenda w/his website).
He's my nut onc. Oncologist/hematologist nutritional expert/guru/true HEALER!
Any more questions, shoot them by me.
I do attribute my NED status (see signature below for details) to meditation, guided imagery, belief in MINDBODY connection and our power to dictate our chosen thoughts to our body (vs be haunted and taunted by fear-riddled thoughts, uncertainty, anger, etc.) + MY LONG LIST OF SUPPLEMENTS.
NOTE -- I AM ER/PR-, 4th stage metastatic blah blah SURVIVOR! I wish the same (the survivor part) to all of you!!! With all my heart...
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
Last edited by Andrea Barnett Budin; 10-02-2007 at 12:46 PM..
Reason: WRONG LINK
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10-02-2007, 12:41 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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oops. SO SORRY. CORRECTION!
CORRECTION -- THIS IS MY POST RE SUPPLEMENTS. There are several of my posts in this thread below you may want to check out, for clarity. Sorry for the error. I hope I have it right NOW...
http://her2support.org/vbulletin/showthread.php?t=28938
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-02-2007, 12:44 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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FURTHER CLARIFICATION... DUH! What is wrong w/me????
See POST #11 for *list*. See other POSTS in above thread for more info. I am obviously not adept at this.
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-03-2007, 06:46 AM
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#6
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Senior Member
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
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Putting this back up top because I know more of you than Andi take supplements. Can you not help a couple of girls out. lol fish oil, calcium, flax seed anything?
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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10-03-2007, 09:47 AM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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Hi Kriss,
I strongly recommend seeing a naturopath. Mine is helping me with all my issues: not wanting bc to rear it's ugly head ever again, fatigue, insomnia, bone health, minor joint issues, general nutrition. Your mileage may vary, and it is an evolving process, but my plan (I am strongly triple +) for now is:
Insomnia
melatonin 20 mg at bed time
benadryl 50 mg at bed time
GABA 500 mg at bed time
General good health
probiotics- Healthforce nutrional's VitaMineral Green (tastes about as good as it sounds, but full of good stuff)
fish oil, flaxseed oil, Condroitin MSM, folic acid, grape seed extract, curcumin, green tea extract, selenium, multi-vitamin, 1 oz. dark chocoalte, fiber tabs, ground flaxseed, concentrated pomegranate juice. I go back and forth on the flaxseed (er+) according to what I read, decided it does more good than harm.
Bones
1,500 mg calcium citrate
get lots of sun (2 hours per day April thru October, also got the Fosamax plus vit D prescription
Stay away from as much as possible
white flour, white rice, pork, beef, non-organic dairy and produce, soy, regular alcohol, non-wild salmon/fish, artificial sweeteners, soda, partially hydrogenated oils, refined sugars especially high fructose corn syrup, artifical colors, preservatives
Eat a lot of
whole foods: produce, unroasted nuts (4 brazil nuts a day- yummy, but a wad of fat  ) wild salmon and fish, chicken breasts, brown rice, whole wheat bread, olive oil only to cook. Limit sweets to once in awhile. Losing my sweet tooth this way! I am trying unsweetend rice milk to replace cow's milk and it is ok.
It took me several months to wean off my old diet (which wasn't horrible) and add the new supplements. But I must say I have been feeling great- little menopausal effects and minimal fatigue and joint pain. My poor feet ache sometimes- take a little naprosyn.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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10-03-2007, 10:18 AM
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#8
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Please Supplement The Supplement List With What *you* Do!
Great list. Good to hear from others. MORE... More feedback, please ladies...
Just a quick note -- my nut onc (Gaynor) says to avoid LARGE fish -- as they have been in the water longer and have therefore ingested more mercury -- ie TUNA (which I love, but...)
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-03-2007, 01:40 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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one centrum daily
1500mg of glucosamine for joint aches
1000 mg of vit d3
1000 mg of calcium carbonate
broccoli, brussel sprouts, caulifower as beggies
walnuts, olive oil, canola oil
limit sugar intake, only a graham cracker a day or piece of white chocolate- must have this, i'm a cookie monster
small meals thru day. fruits with other food, peferably complex carbs
mcs maria
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10-03-2007, 06:12 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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GNC Women's Ultra Multi with NO iron (as I am postmenopausal)
5 1000 mg GNC Fish Oil Capsules
2 Icelandic Health Joint Capsules (has Omega 3 and the common joint stuff in it)
3 400 iu Vitamin D3
2 600mg calcium
3 30mg CoQ 10
2 500 mg olive leaf
3 600 mg maitake mushroom
6 cranberry extract capsules
1 545mg tumeric
2 mixed probiotic capsules (2 Billion colonies each)
1 regular strength aspirin
I break this up over breakfast, lunch and dinner.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-15-2008, 11:43 AM
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#11
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Senior Member
Join Date: Mar 2008
Posts: 141
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Hi everyone-
I thought that I would add to this thread since now my naturalpath put me on a few supplements.
Good Multi wout iron, boron, or copper
Vit. D3 2000 IU's 3 X's a week
Cal/Mag w/Vit D everyday
Grapeseed Extract 100mg
Co Q 10 200mg 3 X's a week
Green tea extract 80%
Curcumin Extract 500mg
Indole-3-Carbinol
Melatonin 3mg
4 oz. of Acai berry w/blueberry juice
4 oz. Pomegranate juice
4-6 oz of Carrot juice
2 oz of Xango Mangosteen juice
A pinch (1oz) of "Brocco" sprouts
That's my list, my multi vitamin actually is geared towards breast cancer patients, if anyone wants to know what is actually in it here's the link, the formula is based on the Cancer Treatment Center of America's formula. http://www.vitalnutrients.net/vnesto...roduct_id=VNM5
Hope all is well
Liz |
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