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06-03-2007, 11:10 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Please give 2 cents worth...
Asking this question for another memeber...How many of you took COQ-10
during your year of herceptin? Did you discuss with your onc and did he
approve?
Thanks All,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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06-04-2007, 04:12 AM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I did not take CQ10. I did not take supplements whatsoever during chemo, radiation or herceptin. But did exercise a lot and wonder if that helped keep my heart strong??
God' Peace shine on you today,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-04-2007, 04:35 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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I take Q10
Hi
I take 200 mg/day of Q 10. I am on 3 weekly herceptin. NED for 1.75 yrs after liver spot dx in 2005. First dx in 2001.
I found an article which talks about Q10 acting on the bcl-2 gene and then another article which talked about a molecule with a similar action which was synergistic with herceptin so I am taking an educated guess in saying that it is OK to take with herceptin and may even make it work better.
I also take it to protect the heart and because it crosses the blood brain barrier quite well so can exert its anticancer effects there. I cant take more than 200 mg a day because it makes me so alert I can't sleep.
Cheers
Jackie
The most important things I take are Q10 and omega 3 fatty acids.
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06-04-2007, 07:07 AM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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I took 300mg of COQ10 daily while on Herceptin and to this day still take it.
My Onc did say it ws OK for me take it.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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06-04-2007, 07:21 AM
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#5
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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I also take COQ10 and am on herceptin until December. My Dr. said ok.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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06-04-2007, 07:27 AM
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#6
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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I take 100 mcg of CoQ10 a day. My oncologist has never mentioned to me about any supplements I take. They are always written on my chart, but I'm not sure he even looks at them. My cardiologist said "I was on my own," when I told him about the fish oil and the Coq10. He did say that he thought the fish oil would reduce my cholestrol. I started taking CoQ10 after a muga of a 53. My latest went tup to a 55.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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06-04-2007, 07:37 AM
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#7
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Senior Member
Join Date: Jan 2007
Posts: 138
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I took it during Herceptin but not dose dense. I also, during Herceptin, took Olive Leaf and still do (as well as many other supplements).
Karen
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06-04-2007, 09:58 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
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I took 150 mg of COQ10 a day during herceptin and still do!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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06-04-2007, 05:59 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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I was taking CoQ10 while on Herceptin alone, along with a boatload of other supplements, all ok'd by my doctor.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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06-04-2007, 07:13 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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I took 200 mg of CoQ-10 daily during Herceptin. I continue to take it today.
My onc knew about it and said it was fine.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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06-06-2007, 07:08 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I took 400mg of CoQ 10 during Herceptin (onc approved) and weaned down to 100mg now.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-06-2007, 07:48 PM
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#12
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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I began taking COQ 10 after two consecutive dropping MUGA's. I take 300 mg per day, which I will reduce when Herceptin concludes in August. I told my onc about it, and he just shrugged.
Hopeful
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06-08-2007, 05:41 AM
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#13
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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I started taking 100mg COQ10 a day after I got taken off (temporarily) Herceptin due to low MUGA scores. I figure it can't hurt... and I get my next MUGA July 2 (and that will decide if I'm off Herceptin permanently, or if I'll continue treatment). I forgot to mention this to my onc.
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06-08-2007, 05:58 AM
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#14
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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My onc said absolutlely no supplements. I didn't question him. So far....so good!
Susan
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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06-08-2007, 06:03 AM
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#15
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Cq 10
Also took 400 mg of CQ 10 during herceptin year and now down to 200 mg. Also do the omega 3 and increased my daily walk for rate and distance. The muga never went below 55 % and the latest EKG ( done 3 months after the year of herceptin) showed improvement. ( I have a funky EKG ). Was it the supplements? Was it the increase in walking? Was it both? Anyone reading about and have comments about the Vit. D studies?
Hugs, Bonnie
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06-08-2007, 06:17 AM
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#16
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Here is a link to Vitacost who are the cheapest for CoQ10 I have found.
They are recommending up to 1200mg a day, and have made that sort of level affordable.
http://www.vitacost.com/CoQ10.html
RB |
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06-08-2007, 06:58 AM
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#17
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Senior Member
Join Date: Jan 2006
Posts: 58
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I take 200mg of CoQ10.
I'm on Herceptin indefinitely, every 3 wks, and so far my MUGA has been great. My onc is fine with me taking it (and all the other supplements I take!)
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