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Old 12-18-2006, 09:23 PM   #1
TriciaK
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Location: St. George, UT
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Hello and Merry Christmas from Tricia K

Dear fellow Amazon warriors: I haven't been on the site or posted for about a month, being busy getting settled here in our new home in St. George, Utah, as well as seeing new doctors and also being involved with holiday preparations. But I think of you all often and remember you in prayer. I even forgot to post on my 77th birthday, December 9! We attended a wonderful neighborhood/church Christmas party on that night, not only a lovely dinner and program, but a dance. And my husband and I actually danced two dances!!! It was great!
I have a new oncologist who is from the Phillipines--seems to be very knowledgeable , caring and POSITIVE. And a new cardiologist and primary care doctor, both also very thorough and caring. Everyone here is so kind and considerate! Not only that, I have started seeing a dentist again and getting much needed dental work caught up. There is no greater proof that I am planning on being around awhile than that fact---because I would almost rather die than go to a dentist! So far I am still NED after 2 PETS this past year and will have another PET next month.
I am so saddened to hear of the passing of our two dear friends, Hope and Lisa. They have fought long and hard and been such an inspiration to all of us. May they be at peace now after all they have gone through. My thoughts and prayers go out to their families.
I will try to check in more often . We are so happy here and really love it! I send my cheeriest greetings for a Merry Christmas and happy holiday to all, and add my prayers to yours that 2007 will be a good year for all of us and especially that we will all get closer to a cure for the BC beast. May God bless all the doctors and researchers, and all of the Amazon warriors who keep on fighting! Hugs, Tricia
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Old 12-18-2006, 10:34 PM   #2
chrisy
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Tricia,
Thanks for checking in - the holidays are always hectic enough even without moving, unpacking, settling in, finding new doctors. Oh, and going to the DENTIST! You are really getting bold, facing the fear of the dentist - what's next, speaking in public??? Delighted to hear you are doing so well and have found good support in your new home.

I share your wishes and prayers for a good 2007 for us all.

God Bless
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 12-18-2006, 11:21 PM   #3
sherri
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Dear Tricia,

Reading your posts always put smile on my face. I'm so happy about your good results recently and hope you continue like this. Happy birthday to you, merry Xmas and happy new year, the best wishes for you and family!

Big hug,
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Old 12-19-2006, 08:22 PM   #4
Sandy H
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Its so good to hear from you. Have missed your posting but can understand how busy you have been. Hope to see more after the Holidays. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 12-20-2006, 04:57 AM   #5
Barbara H.
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Smile Happy Holidays!

Happy Holidays to you, Tricia, and thank you for posting. I'm so happy to hear that everything is going so well for you. I am home recovering from brain surgery and writing report cards for my third graders. As a teacher, you don't get a break even when you are home. They are intensive reports with narritives, and it is important to take time for each one. The parents hang on to everything you say, and in your profession, I know that you understand what I am talking about. It's hard now because I coming off the Decadron and am high as a kite. All my son's friends are home from college, and teenagers are steaming through the house. There's no way I can get rest, but maybe that is what is keeping me alive. I know we are supposed to take time to rest and heal, but I feel that my mission of teaching my third graders and hopefully helping them to understand life at a deeper level is worth it. Again, it really gives me a purpose.
Thank you so so much for your constant wisdom and for all you share!!!! You are a true gift!!!!
Barbara H.
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Old 12-20-2006, 01:12 PM   #6
StephN
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Wink House warming

Dear Tricia -
Here is a "happy house warming hug" from me to you. {{{HUG}}}
Could not have better news than your message. "All is calm, all is bright..."

I feel like we have been moving. Camping out in your house with no power for 3 days really brings one up short! People did not like to leave, as it is an open invitation to burglars when practically the whole metro area is in the dark. Just got the cable TV/internet back this morning. So far behind now on the holiday prep that I am feeling stressed.

Thanks for the lovely good wishes to all of us, and we send the same back to you and yours. I know your children feel much better having you close by. And my wish for 2007 is that the new doctors continue to be kind and vigilant.

P.S. I, too, am getting a lot of dental work done. Two crowns, a root canal (my first) and two other re-fillings. Costing a lot even with insurance, so this also says "I plan on sticking around!"
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-20-2006, 01:22 PM   #7
AlaskaAngel
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Talking

Hey, nice as always to hear from you, Tricia, so thanks for the update! And I'm delighted to see Steph as well, as Seattle could learn a lot from Alaskans about power outages, and snow and how to drive in it... Great to see you both!


A.A.
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Old 12-20-2006, 03:11 PM   #8
tousled1
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Tricia, Glad to hear that you are still NED. Good news like that is always an inspiration. Sounds like you are getting settled in Utah and having a good time. Happy Belated Birthday
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-20-2006, 03:47 PM   #9
lexigirl
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Dear Tricia,

How nice to see your lovely smile! I am happy to read that you have settled in nicely to your new home. I hope that you have a wonderful Christmas and a happy and healthy new year!

Hugs,
Lexi
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Old 12-20-2006, 04:05 PM   #10
rinaina
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Sounds like your new home and new city are being good to you. So glad you are happy. Happy 77th and many more happy healthy years. For sure if you are going through with all this dental work, you are going to be around for years to come!!!! No one likes going to the dentist and this comes from a retired dental hygienist! Have great holidays and a happy healthy new year.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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