HonCode

Go Back   HER2 Support Group Forums > her2group
Reload this Page Regional recurrence
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 02-12-2008, 09:09 AM   #1
Kim in DC
Senior Member
 
Join Date: Nov 2004
Posts: 190
Regional recurrence
I had a biopsy from my skin in my arm pit last week and it came back positive. I have been on herceptin/taxotere and herceptin/navelbine.I have been on herceptin alone since then. Are there any other combinations that are supposed to be synergistic with herceptin? Did anyone progress under the arm after lymph nodes were removed? The surgeon is saying that it is not necessarily skin mets but clogged lymph vessels similar to my ibc presentation. I will have scans this week. I'm praying that it is only regional.

Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
Kim in DC is offline   Reply With Quote
Old 02-12-2008, 09:15 AM   #2
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Hi,

I had the same thing on my breast just last month. I am on Navelbine and herceptin right now to shrink it down. A rash appeared because of clogged lymph vessels. I will then have a mastectomy with a skin graft.

Just to let you know, my scans came back clear. I'm believing yours will also. I know it is very scary to go through it again. I will be praying for you.

Hugs to you,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 02-12-2008, 09:17 AM   #3
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
I forgot to mention. I have heard that Xeloda and Tykerb work well for this type of issue. It is hard to stay since everybody is different but I just wanted to put that out there.

Take care,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 02-12-2008, 09:28 AM   #4
Kim in DC
Senior Member
 
Join Date: Nov 2004
Posts: 190
It's funny that you replied. I was following your diagnosis thinking, "that sounds like me"
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
Kim in DC is offline   Reply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT -7. The time now is 06:55 AM.
Contact Us - HER2 Support Group - Archive - Privacy Statement - Top

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter