If you fit this profile EXACTLY please respond.

[Jean]

Stage 1
Node Negative
Grade 1 Tumor
ER Positive
Pr Negative
Her2 Postive +++
Small tumor under 1CM

What was your treatment?
Are you taking herceptin?
Did you have any Chemo?

I am attempting to connect to a group who has this profile and is or is not
taking herceptin. Please do not reply if you are NOT ER POSITIVE.

Many thanks to all.
Jean

[karenann]

Hi Jean,

I thought I would reply even though my tumor profile does not completely fit what you are asking. I was diagnosed with the following:

stage 1
er+ 95% /pr+10% (weakly positive)
grade 3
1.3cm tumor
node negative
Her2+++

I did: dose dense AC then T, 34 rads. I am currently on one year of Herceptin and five years of Aromasin.

Hope this helps.

Karen

[suzan w]

Hi Jean

almost the same!!
stage 1
node neg
Grade 1 tumor (7mm)
ER+
PR+ (different than you!)
Her2+++
invasive lobular
treatment: bilateral mastectomy (June '05)
4 rounds of A/C
currently doing Herceptin for a year-every 3 wks (started Oct '05)
Arimidex for 5 years
Best to you, Suzan

[mts]

Hi-

I was dx'd Stage I in 2004
Er+ 15%
PR-
Node Neg
Her2 +++
tumor grade 3
Tumor size 9mm
I'm 43 yrs old

later found via mri two more tumors .4 and 1.6 (that were not visible on Mammo and US)
Lumpectomy X 2
had dose dense AC+T and then rads. Currently on Tamoxifen and Herceptin
maria

[DeborahNC]

Stage 1
Node neg
Grade 2
ER+/PR-
Her+++
.7cm IDC

With this recurrence I opted for bilateral mastectomy. Had 9 of recommended 18 Taxol/Herceptin infusions. Now on Herceptin every 3 weeks through October.

[Jean]

Suzan W.

Many thanks for sharing your profile. My tumor was almost the same size as yours, 6MM and half of it was removed during the biopsey. I had a lumpectomy
April 05, 32 x radiation. I am also on Arimidex My doctors did not recommend
chemo or herceptin - even though I asked...and asked...and asked...
they believe the risk out weighed the benefit. I see my onc. on 4/19
and I want to go in with additional information regarding the herceptin.
I believe last year there were not any women who went on herceptin
without having had chemo? Not sure - that is one of the many reasons I posted the profile request. Your treatment seems aggressive for a small tumor
is it due to the Pr+ ? I had wanted my dr. to treat me aggessively since
I do not want this coming back. How are you feeling while on the herceptin
treatments? Do you have any joint pain from the Arimidex?
Thank you once again for answering - I really appreciate your input - all the informaiton we gather is so vital. Wishing you all the very best!
Jean

[Jean]

Hi DeborahNC,
Thank you for responding to my profile request.
You mentioned that this was a recurrence. Would you mind detailing
that portion. What was your first dx? and treatment?
Hope your feeling well during your herceptin treatments.
Many thanks and sending all good wishes and prayers.
Regards,
Jean

[Jean]

Hi Maria,

Thank you very much for responding! Did your dr. recommend the chemo and herceptin due to the grade of the tumor - or did you request that treatment?
You mention that "later" via mri two more tumors were found. Did you have the mri soon or right after the inital finding of the 9MM tumor? I am quessing the dr. may have recommended chemo due to the additonal tumors? This will assist me greatly. Wishing you all the best and many thanks for sharing.
Jean

[kat in the delta]

Hi all
HER2+++(ICH&FISH)
Node--+
Stage II
Grade III(my tumor was over 4.8cm)
EST--+(but, weakly so "?")
PR-- neg.
4 adriamy/cytoxins--12 Taxols,12 HERCeptins
Partial radical masectomy before chemo,1YR AGO
1st time cancer, my surgery's anniversary is today!

Now, I'm in my 3rd month of a yr. of Herceptin. What about me taking something for the estrogen receptor being "positive". Who Knows About This??? I see someone taking Herceptin and Tamoxifen( ?) RSVP
Also, do any of you still feel like you are "a Patient" like I do because Herceptin is IV ?? RSVP

[hkorel1]

my path report said infiltrating ductal carcinoma
estrogen and progresterone positive
c-erb-B2 positive 2+ confirmation by FISH pending
stage 1 no nodes

now my onc says I am not her 2 positive as FISH said negative
should I worry about recurrance

thanks