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Steph N.,
Thank you for your responce. While on Herceptin only, and NED, I was not having weekly blood counts. This seemed reasonable to me since Herceptin doesn't decrease your counts. During one treatment we did a CBC and found my hemoglobin to 7. In retro spect I was feeling more fatigued than usuall over several months, but living with this disease I honestly didn't process that mentally. My onc felt the most common cause would be a gastrointestinal bleed from somewhere. I then had an upper gi endoscopy that was normal, a lower gi endoscopy that was normal. Fortunately my gi doctor recommended a capsule endoscopy-where you actually swallow a large vitamin like capsule that is really a camera that records everything while passing through. This way they can see the small intestines where the endoscope can't reach. Sure enough they found a lesion in my small bowel. My rountine, every 3 month CT scans did not pick this up. I hope this helps.
Jerri
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